It feels like so much has happened since my last post. Casey has been crazy busy.
Our biggest news is that Casey is getting her wish VERY soon. Most of her family and friends will be able to join her. It is going to be such a great day for her. Check back in the next couple of weeks to see pictures and details.
The feeder seat that we have been waiting on, expected in August, came in early. We have been trying to get Casey up in it as much as she will tolerate. She seems to be doing pretty good with it. She likes to put the table next to her and prop up her little art station. It’s nice because it is tall enough that as she writes/draws (with help) she can see what she is doing. We also adapted her Little Room to work with the new seat. She always fell asleep in the Little Room when she would lay in it. Now that she is sitting up instead she is much more alert. She spent a good 20-30 minutes in it the other day. She kept trying to head butt some of the objects hanging around her. She is such a goof ball sometimes.
Casey has still been having some issues with her ear. It is not worse, it just doesn’t seem to want to heal. She saw a wound nurse a few times, then last week she went to a special wound clinic where she saw a plastic surgeon as well. The plan is to keep her off of it as much as possible then get it checked again later this week. She has another appointment with the doctor next week too. The good news is that it does not seem to be hurting her.
Her mouth is still doing some weird stuff. It appears to have slowed down, or possibly stopped closing in (swelling in). It is not getting any better yet though. We have an appointment with her dentist later this week to get it rechecked. I think the dentist was right; I think it is just some teething side affects.
Casey got her new AFO’s last week. The design is a little different. I have tried really hard to make them work. They just don’t. We are taking them back in later this week to have them make some adjustments. They are so tight I can’t get her foot in. If I cram it in, it starts swelling up. For now she is still in her old ones. Hopefully they can get these adjusted so she can wear them soon.
That’s about it for now. As always, we hope everyone is doing well.