Casey has had a few good days in a row now. The doctors have mentioned being able to continue her positive pressure machine for her lung at home. Just the mention of the word “home” is what we have been waiting to hear – we obviously don’t have a date yet, but we are getting there. I know we are all so ready to be out of here as soon as possible.
Casey spiked a high fever a few days ago so she has been on antibiotics. The cultures are still negative so they are thinking the fever was not related to any kind of infection. They are planning on stopping the antibiotics tonight (midnight is her last dose). They are also going to try cutting back on her methodone pain medication again.
Feeds and xrays are about the same. No big steps forward no big steps back. She is maintaining her feed rate, but still has some loose stools and sore rear end. Her xrays are still very cloudy, but slowly opening up.
Casey has been on room air (no oxygen tube) for a few hours now and is doing well. Hopefully she won’t need to wear the nasal cannula any more. She has been doing really good sitting in her chair too.
We want to say thank you so everyone for all of your thoughts and prayers over the past few weeks. Also, thank you to all of our family and friends who have been helping out feeding the fish, getting the mail, running errands, bringing us food, etc. We really appreciate everything.
We will post more soon. Hopefully we will be able to post an ETA on getting out of here soon. Keep everything crossed for us 🙂