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Special Needs, Medical, Parenting, Complex, Chronic, Tools, Resources, Support
There have been a few post over the years that seem to get a lot more traffic than our typical updates. Below we have summarized these post and made them quick and easy to find.
- Between The Lines
A parent’s take on life with a child that has special needs. How we decide what to share, what not to share, and how we build the content for this page. - Mobile Imaging
Details on how to get a mobile image done at home. This is great if your child is at risk and you need to avoid a germy ER during flu season. - Supplemental Needs Trust
Details on how to go about setting up a special needs (supplemental needs) trust in order to protect your child with special needs in the future. Based on our experience. - Waivers
Details on how to get Texas Medicaid Waivers. Our experience, some useful tips, numbers, etc. - Little Room
Pictures and details on Dr. Lilli Nielsen’s “Little Room”. An easy to use tool for children with CVI - Farrell Feeding Bags
Pictures and details on how to use Farrell Feeding Bags is hard to come by. Here we have pictures and details on how they work. - Stem Cells
Our trip to Mexico for stem cells. We include pictures and details of the trip and procedure. - Hyperbaric Treatment
Details about how and why we chose HBOT, as well as some background on the center. - Hypoxic Ischemic Encephalopathy (HIE)
Overview of Casey’s primary diagnosis, symptoms, treatments and much more.
In addition to our own content/blog, Marty also contributes to many other blogs for kids with special needs. Here are some links to some of the articles/blogs that she has written.
- Deeper Than the Diagnosis – Sheridan Johnson
- Faith, Religion, Spirituality – Complex Child Magazine
- How to talk to a SN parent – Papa’s of Preemies
- Missing Milestone – Preemie Babies 101
- Thanking Our Village – Preemie Babies 101
- School, but My Child is Only 3?! – Preemie Babies 101
- Breastfeeding…2.0? – Preemie Babies 101
- Getting Out and About with Your Special Needs Child – Preemie Babies 101
- Feeding Tube or Diet Fad? – Preemie Babies 101
- Marty and Tim Barnes and Their Daughter Casey – Hand to Hold
- Texas Parent to Parent Newsletter (page 7)