In the medically complex community losing our babies is too often a reality. I meet a lot of parents that have lost their child and I hate that this really screwed up club continues to grow. It’s nice that we all support each other, but I really wish none of us had to go through …
Another Day
For those that don’t already know, I do a lot of public speaking where I share Casey’s story. I talk with nursing students, med students, and on occasion I even talk to primary schools. I use the good and bad lessons from Casey’s life to help mold future providers and to prepare them to be …
A Really Nice Day
Yesterday was a really nice day, it’s been a while since I turned off my school/work mode and just enjoyed a day. The weather was perfect, and everything was exactly what I needed. We started off the day by heading to a park nearby that Casey always loved. It’s called the Play for All Park …
Life and Grief
I haven’t updated this site in a while for a few reasons. I have been pretty busy, doing a lot of different things. And, I have’t known what to say. It’s hard to write about my feelings, and we aren’t going on Casey adventures anymore. There have been many times I have come to write …
Casey’s 11th Birthday
Casey’s 11th birthday is coming up in just a few weeks. Last year we were still in fog from losing her just before she turned 10. She LOVED her birthday! Every year we would go all out. She loved to see her friends and have a day all about her. We would usually have a …
GP’s First Anniversary
1 year ago today we lost my grandpa, Lin. He always signed his cards and preferred to be called GP. GP and Casey had a very special bond. They loved each other so much and would jump at the chance to spend time together. Casey loved to go visit his at the assisted living center …
Rants from a Woman About to Lose her S***
I have had many moments in my adult life where I have had to step away and take a moment. It just amazes me though how clueless some people really are. Let’s start 10 years ago. Tim and I were new parents and had a child with more medical issues that we had ever seen. …
Preparing for the Holidays
Over the years we have shared posts that talk about some of the stress that came with the holidays. There were food centered holidays and we had to find ways to modify these so that Casey could participate. Then there was the issue of over stimulating Casey. When we would have a house full of …
The Conversation
All of my life my mind has wondered. I think most of us do this at least some (maybe I do it more than others). When I am about to meet someone knew, go to a party, present to a group, etc I imagine the event and the dialog that goes with it. I will …