Let’s start with the good news. Casey has responded really well to the increase in her neuropathy medication. We saw a difference immediately. She has been sleeping better at night, and the nonstop, inconsolable crying has finally stopped. She was breaking our hearts.
Casey’s BFF Makayla moved away last weekend. Her mom was also one of Casey’s nurses. We miss them already. Luckily we were able to squeeze in one more play date at the accessible park before they had to leave. Casey loves Makayla (and Maritza- her mom); hopefully they will come to visit soon and often.
We are still having a really hard time getting Casey’s formula issues resolved. I won’t go into a lot of detail. We tried a new one last Thursday and with about 3 ounces we had to stop (a few hours). Casey is still recovering from all the affects of that formula. We added it to our ‘Never Again’ list.
We have a few more things to try. We are in the process of trying an alternative now. We will see how it goes over the next day or so. We are really hopeful that this works. We are down to the last can of the old stuff. When it’s gone, that’s it. Hopefully we will post good news of a new formula for Casey in the very near future.
We are kind of laying low over the past week or so. Casey has been trying to recover from the formula that did not go so well, and Tim and I have been pretty busy with work and projects.
Casey did get to go to one of her favorite places before she got sick (in addition to playing with Makayla). Casey LOVES her dentist. She has lost so many teeth. She only has one left up front. She looks so cute. While at the dentist we found out on of her bottom front PERMANENT teeth is coming in. She is growing up way too fast.
That’s about it for now. We hope everyone had a fun and safe fourth, and that everyone is enjoying their summer so far.