They extubated late this morning – they have to almost stop pain meds during this just in case there is trouble breathing. Casey struggled a little, but eventually calmed down and now she is doing much better. No word yet on when we will move out of ICU and onto the floor unit – it …
Surgery done!
Casey is finally out of surgery and settled in ICU. Things took a little longer than expected, but everything did go well. She is still intubated, but is on low “pressure-assist” mode with minimal oxygen, so they are optimistic that she can be extubated in the next day if she continues to do well. We …
At the hospital
Casey is sleeping and we are in the waiting room at Children's Hospital. Her surgery is scheduled for 5 hours starting at 9:30am PST, so we will post more afterwards when she is settled in ICU.
Web site changes
Just a quick note to all that we are making a lot of changes to the web site. In addition to changing the web site name and layout, we are setting up a way to take donations as some people have asked about, to sell items like “Casey” bracelets, and to generally make it easier …
New Car Seat
Casey is growing so fast. We finally moved from the baby car seat to the forward facing seat. She is SOOOO much happier. She will actually chill out and sleep in her new seat. She is able to use the DVD player now too. Her and Tim watched one of her videos on her first …
Tim recovering at home
I am now continuing my recovery at home from surgery. Pain management was a real issue at the hospital, which is mostly what slowed my release. It feels better to be at home, but most of my time right now is spent in bed in specific positions that are comfortable. Getting out of bed is …
Out of intensive care
Casey is getting much stronger, and was taken off the ventilator and moved out of the intensive care unit. Over the last couple days, she has had an upper GI test so surgery can decide what types of procedures they recommend and how urgently they should be scheduled, since another pneumonia from reflux/aspiration would be …
Casey has turned the corner
After 10 days in Intensive Care, the doctors have finally used our favorite phrase “turned the corner,” letting us breathe a huge sigh of relief that it’s when and not if we will be bringing Casey home. Her lungs have continued to recover slowly, and even her platelets have rebounded a bit. The respiratory team …
Casey is in critical condition at Children’s Hospital
Just a quick post to let everyone who has been calling what has happened with Casey. Last Sunday she had a back reflux on which she aspirated into her lungs. We were not able to get her to recover her breathing or heart rate, and she was coughing up blood, so we took her to …