Early July a film crew came out to film a day with Casey. This was part of a project that the State of Texas is doing in collaboration with Homeland Security and Texas Parent to Parent. A new website was built, Navigate Life Texas, to help families like ours. Instead of just being links and …
Ebbs and Flows
We have learned with Casey that we could have a great morning and then the next thing we know we are running around like a bunch of headless chickens trying to figure out what the heck is going one an hour later. Luckily we have really understanding friends and family. This often means we can …
New York Times
Yep, you read that right, Casey is in the New York Times this week. The NYT has a photo journalism blog called The Lens that features different photo essays on all types of topics. The photographer that has been around for the past year or so has been working with us and a few other …
Tummy Troubles
Casey’s ear infection last week was really bad so they put her on an oral antibiotic as well as her normal drops. Antibiotics do such a number on her poor tummy. We have been swimming in poopy diapers all this week. The antibiotics run for 10 days and the tummy issues kick in around day …
Back to School and More…
Special Needs, Medical, Parenting, Complex, Chronic, Tools, Resources, Support, back to school Casey went back to school this week. She does home bound, so back to school is really back to her playroom. She is in 4th grade this year. She has the same teacher and most of the same therapists working with her, which …
We’ve Gone Social
Social Media, Pinterest, Facebook, Instagram, Twitter, audience Special Needs, Medical, Parenting, Complex, Chronic, Tools, Resources, Support In order to try and expand our audience a little, we have gone social! CaseyBarnes.org can now be followed on Facebook, Twitter, Pinterest and Instagram! You will be able to connect to our social media sites by clicking on …
Summer Wrap Up
It is hard to believe, but it is already half way through August. Wow! Sadly, we kind of missed the entire summer. Between illnesses (all of us), our nursing schedule being out of whack and work travel we really didn’t do much for the summer. We barely even made it to the pool right outside …
Presentation
Next week I have been asked to present at a conference for healthcare professionals. It will be mainly NICU nurses and staff, but it is open to others as well so I am sure there will be a good mix of people. A company that makes products we have used since Casey was born hosts …
Traveling Daddy
Tim usually has to go to India for work ever 12-18 months. He went in April this year and then ended up taking on some additional responsibilities that led to an extra trip early July. He got home and then 1 week later had to go back yet again. Usually we have lots of time …