Buying gifts for kids with complex needs can be tricky. Hopefully these tips can help you find the perfect gift for the special little ones in your life. An easy go-to gift that people love to get all kids is stuffed animals. They are cute, soft and cuddly and you can pick one up just …
Why Special Needs Parents Say Bah Humbug
We are all very aware that being a parent to ANY child is stressful. There is the financial concerns, constant worrying about their health and safety. Concerns that your making the right choices. Making choices for ourselves if one thing; making choices for a family is really heavy. Many of us know of some of …
To the Newly Diagnosed Family
I am often asked, “If there is one thing you could tell others in the beginning of this journey, what would it would be?” Depending on my day, this answer varies. There are few things I would like to share with that mom or dad whose child was just diagnosed (with anything really- it doesn’t …
What Does a Deaf-Blind Diagnosis Look Like?
Shortly after Casey was born, while we were still in the NICU, we were told that Casey failed her hearing screen, but that many babies fail this test. They went on to tell us that they will be doing additional testing and that we should not worry about anything just yet. They performed an additional …
10 Things You Should Know About Having a Child With Complex Medical Needs
There are lots of articles on sites like The Mighty that cover topics like “Invisible Disabilities”, “Being a Parent to an Autistic Child”, etc. While I know there are a lot of families that can relate to these articles, that is not my world. My world is the complex chronic side and we have a …