Caseyisms
Casey was born in 2006. If she had been born even a year or two sooner, chances are she would not have survived her birth. If it had been 3-5 years sooner, chances are I would not have survived either.... Continue reading →
General Special Needs
A variety of topics for caregivers of children with special needs.
8 Gifting Tips for Complex Kids
Buying gifts for kids with complex needs can be tricky. Hopefully these tips can help you find the perfect gift for the special little ones in your life. An easy go-to gift that people love to get all kids is... Continue reading →
Why Special Needs Parents Say Bah Humbug
We are all very aware that being a parent to ANY child is stressful. There is the financial concerns, constant worrying about their health and safety. Concerns that your making the right choices. Making choices for ourselves if one thing;... Continue reading →
To the Newly Diagnosed Family
I am often asked, “If there is one thing you could tell others in the beginning of this journey, what would it would be?” Depending on my day, this answer varies. There are few things I would like to share... Continue reading →
What Does a Deaf-Blind Diagnosis Look Like?
Shortly after Casey was born, while we were still in the NICU, we were told that Casey failed her hearing screen, but that many babies fail this test. They went on to tell us that they will be doing additional... Continue reading →
10 Things You Should Know About Having a Child With Complex Medical Needs
There are lots of articles on sites like The Mighty that cover topics like “Invisible Disabilities”, “Being a Parent to an Autistic Child”, etc. While I know there are a lot of families that can relate to these articles, that... Continue reading →
What is Home Health?
Short answer – Home Health is ANY medical service provided in one’s home. Home Health can be all types of things. Therapy services, nursing services, aids and attendants and hospice are some common forms of home health. Therapy Services Therapy... Continue reading →
What is Cerebral Palsy (CP)?
Before we get started, a little about myself. I am NOT a doctor, nor am I a trained medical professional in any way. I am a mom. My daughter, Casey, has very complex medical needs. I joke with other moms... Continue reading →
“Star Thrower” by Loren C. Eiseley
Once upon a time, there was a wise man who used to go to the ocean to do his writing. He had a habit of walking on the beach before he began his work. One day, as he was walking... Continue reading →
How to Talk to a Special Needs Parent
I am a mother of an amazing little six year old girl, Casey. Some may say she is medically fragile, some say she has special needs, some say disabled, and the list goes on and on. We say she is... Continue reading →