It has already been almost a week! It feels like we just came home yesterday. I think we have been going nonstop the entire week. Good new, it makes the time fly. Bad news, we are exhausted! We spent Saturday evening and Sunday trying to get caught up on laundry, TV and just resting. Casey …
WE ARE HOME!!!!
We are all so happy to report that we are home as of late this afternoon. We got all of our equipment set up yesterday and they wanted us to do at least one night there with our equipment before going home. We were all packed up and ready to go before 7AM. However they …
Good Stuff
Casey has had a few good days in a row now. The doctors have mentioned being able to continue her positive pressure machine for her lung at home. Just the mention of the word “home” is what we have been waiting to hear – we obviously don’t have a date yet, but we are getting …
Hard Day
Friday started the weekend out so well. We got the call to cancel the bronc, then we heard her xray had shown some improvements. Then Saturday and Sunday the xray stayed pretty much the same. We were hoping to back off a few treatments, but that has not happened just yet. Last night around 3AM …
Plan E?
What a crazy few days we have had. We do have good news- Casey is NOT going for surgery this morning. She was scheduled for a 9AM broncoscopy. She was all prepped and ready to go. Then last minute they said wait, it may not be necessary. The increased bipap pressure night before last helped …
Rollercoaster
We are up then we are down, then up again, then down again. So stressful. Last Wednesday Casey had a wonderful xray. Then Thursday it looked collapsed again. Casey worked hard all weekend. Each day her xray looked a tiny bit better. On Sunday her xray looked a lot better. We expected this mornings xray …
Upper GI & More…
Casey had a pretty rough night and morning. She seems to be having some tummy issues. She HATES poops. She usually has just one a day. Between 8PM yesterday and noon today she had 5 or 6 (a lot for her). each one got her a little more worked up. Between that and the aggressive …
Back in the Hospital
Casey is back in the hospital. We are not sure how long, or what all we will need to do. She is comfortable right now. She had a pretty good night. We expect to talk with the doctors this morning to get a plan in place. As we get more information we will post. We …
Home – For Now
After a very tough week we are finally home. We have a TON of appointments we have to coordinate over the next couple of weeks. Casey was finally able to get some food down and her pain under control (and no more bleeding) enough for them to let us fight the rest of the battle …