Category: Casey

In the medically complex community losing our babies is too often a reality. I meet a lot of parents that have lost their child and I hate that this really screwed up club continues to grow. It’s nice that we all support each other, but I really wish none of us had to go through …

For those that don’t already know, I do a lot of public speaking where I share Casey’s story. I talk with nursing students, med students, and on occasion I even talk to primary schools. I use the good and bad lessons from Casey’s life to help mold future providers and to prepare them to be …

Yesterday was a really nice day, it’s been a while since I turned off my school/work mode and just enjoyed a day. The weather was perfect, and everything was exactly what I needed. We started off the day by heading to a park nearby that Casey always loved. It’s called the Play for All Park …

I haven’t updated this site in a while for a few reasons. I have been pretty busy, doing a lot of different things. And, I have’t known what to say. It’s hard to write about my feelings, and we aren’t going on Casey adventures anymore. There have been many times I have come to write …

1 year ago today we lost my grandpa, Lin. He always signed his cards and preferred to be called GP. GP and Casey had a very special bond. They loved each other so much and would jump at the chance to spend time together. Casey loved to go visit his at the assisted living center …

Over the years we have shared posts that talk about some of the stress that came with the holidays. There were food centered holidays and we had to find ways to modify these so that Casey could participate. Then there was the issue of over stimulating Casey. When we would have a house full of …

I love getting signs from Casey. I don’t get them everyday, and sometimes I seem to get more than others, but I love the little messages she sends me to let me know she is okay. I always knew I would be here without her one day, and I did my best to make the …