Author: MartyBarnes

We took Casey to the pool for her first swim. We were not sure how she would react, but she seemed to really like it. She hates her bath until we start to wash her hair then she loves the bath. In the pool I let her float (with my support) and I bounced her …

Tim is finally starting to feel a lot better. He is still taking some pain pills, but much less than before. He is able to walk some and stays awake downstairs most of the day now. The only bad side is that he is also starting to get very stir crazy. We went out yesterday …

Casey has been such a good girl. She really prefers to stay home and cuddle all day, but she has been going out for over a week now. We are using the stroller attachment for her feeder seat now and it seems to help when we have her out. She is MUCH more comfortable. We …

Tim came home on Thursday evening. He was sent home with a lot of pain, but he was able to get out of bed, eat and all of the things he has to do so they said he was able to go home. Megan left Thursday morning and Molly came out in her place that …

Tim had his back surgery yesterday. The surgery went really well. They took him back around 7:30 AM and told me they would be back in 2 hours. I ran home while Tim’s mom (Theresa)stayed at the hospital and I was heading back up at 9:00 when Theresa called me to say he was already …

Many people have been asking what actually happened. Over the past few weeks we started with a partial story and have been piecing things together. Some of you that have talked to us on the phone many have parts of the story, but for all that are curious here is the whole story. Shortly after …

We are finally home. This was a really long hard stay but we are all so glad to be back home. Casey was discharged around lunch today and we just finished getting her and all of her stuff settled at the house. She seems to be feeling a lot better. She is very tired (as …

Casey has passed the 16 pound mark. In the past couple weeks she has really been having a growth spurt. She passed 16 a couple days ago and is still going strong. She is getting really long too. When Tim holds her up on his shoulder her feet are already down to his waist. She …

Casey and I seem to be getting busier and busier. We seem to keep adding more and more therapies, specialist, treatments, etc. Every time I think we have everything set up something new gets added to the routine. Everything is going really well, just very busy. We are still making progress (slow, but steady) on …

Casey is so happy to be home. With in an hour of having her home she was cooing and talking to her couch. She has been doing so much better since we got back home. We have the oxygen at home to use at night, but we really don’t see it doing much. The flow …