I am not really sure where to start. A lot has happened since our last post (good and bad). We have not been back in the hospital, so that’s good. I guess I will just start where we left off. The weather has been crazy around here. We have had record highs and lows in …
Santa Clause is Coming to Town
We are getting ready for Christmas around here. Casey has been feeling a lot better. She still only has a little energy, so we have to limit what we do, but she is getting there. Last weekend we had our second annual Special Needs Christmas party. She had a good time and got to see …
New Record
Every so often I convince myself I have learned all I need to know to manage Casey’s care. I am always wrong on that one. Sometimes it is big things I have to learn sometimes small, but I am always learning something new. She does like to keep us all on our toes. Over the …
Thankful
On Facebook it is pretty common to see people post “days of thanks”. Each day from November 1st through Thanksgiving they will post something for which they are thankful. I like to read these, but I don’t usually post them myself. It’s been a rough year for us and I am feeling especially thankful right …
Fall is Here
I love this time of year. The weather cools off a little, but not too much. You can go outside without melting. When you get in your car, you don’t burn yourself with the metal from the seat belt. Fall is definitely my favorite season. Casey really likes this time of year too. She has …
Halloween Prep
Casey had to miss the trunk-or-treat yesterday. We were really hoping she would be up for going, but she was having another rough day. Trunk-or-Treat is something that I heard a lot about last year. It can be any group of people/businesses that get together and line up their cars. They all have treats in …
90th Birthday & More…
For all of you that know us, you know we are big fans of Halloween. Growing up it was always one of my favorite holidays. Casey has not been feeling well off and on for a few weeks now, so we have not picked out her costume yet. She is gong back and forth between …
Bedroom, School, Dance and More…
Casey’s room is all setup. She loves it. When we take her to bed at night she is so happy to be in her fairy room. This morning her nurse had to drag her out of bed at 8 (that’s really late for Casey). She has little fairy touches all over the room along with …
Where’s Casey
We don’t have blinds installed yet & Casey has not been happy about the afternoon sun. She has discovered home made tents (with the help of her nurses). Can you find Casey?