The Good & The Bad

Let’s start with the good news.  Casey has responded really well to the increase in her neuropathy medication.  We saw a difference immediately.  She has been sleeping better at night, and the nonstop, inconsolable crying has finally stopped.  She was breaking our hearts. Casey’s BFF Makayla moved away last weekend.  Her mom was also one …

Her Very Own Chili’s

For anyone that does not already know, Casey is a big fan of Chili’s.  Anytime she gets to go out to lunch she always picks Chili’s.  Casey has always done her own thing.  I think most 6 year-old girls would pick Chuck E. Cheese or McDonalds.  Not my Casey, she wants Chili’s.  One of Casey’s …

Updates

Casey finished her antibiotic for the MRSA ear infection a week ago Friday.  We were very optimistic that when she finished she would go back to her usual happy self.  Last Saturday she did really well.  She was a little fussy early in the morning,  but only for about an hour.  After that she was …

D-R-A-M-A

My goodness, I think Casey must be hitting her terrible two stage.  It is nonstop drama around here.  A month or two ago she master this new, totally pathetic cry.  She has learned that the louder she does this the quicker we respond.  I know, don’t respond.  I wish it were that easy.  With her …

My First Grader

Casey is officially a first grader now.  I can’t believe she is already done with kindergarten.  She is growing way to fast!  The last few months of school were tough.  Casey had a lot of medical issues (nothing serious) that made her miss school.  It seemed like we finally got back on schedule and then …

Is it June yet?

May has been a rough month so far.  We had a night nurse that had been with Casey for about 2 years.  Up until early 2012 she was good.  She was late all the time, but she never called in and did a good job when she was here.  We could live with the lateness …

Library Day

Casey was finally able to go to the library with the kindergarten class today.  She had a great time.  She sat at the girl’s table for story time and made a bunch of new friends.  She really likes books about elephants.  We laughed when she went with just her teacher 2 weeks ago and picked …

Party & Other Fun Stuff

It’s official, as of Monday Casey is a 6 year old. Thank you to everyone who helped make this a special event for her.  She woke up excited about it being her birthday.  We got her dressed and ready for school in one her new outfits.  About an hour before school, our power went out.  …

General Update

Casey had an appointment with her Ortho last week- just a standing 6 month check-up.  Overall it went well.  They wrote an order to get an evaluation for a new wheelchair.  Casey has gotten so long that she is hanging out of her current chair.  Currently she is in a wheelchair/stroller.  The next chair will …

Family Birthdays

Many of you may know this already, but for those that do not, most of my side of the family lives in Texas. We have some in Dallas and Houston and some here in Austin. Even though we live in the same state, between work and kids and life in general we don’t get to …