Casey had a fun and busy Saturday. She started with an Easter egg hunt at the local accessible playground. She missed it last year since she was in the hospital for her surgery. She went the year before and had a great time. It was pretty chilly and windy Saturday, but she wanted to go. …
Nursing- Again :(
I can not tell you how often I fantasize about being able to put Casey to bed and then just going to bed myself. Or being able to throw her into the car and head out to run errands with her in tow. It seems like such simple things that so many people take for …
Trip to the Aquarium
After a really long and hard winter Casey finally had a long over due good week. She was up for playing with her toys, she worked hard for her teacher and therapists, she went to all of her scheduled appointments, and she finished up her week with a visit to the new aquarium. She met …
Rock, Rock and More Rock
The pool installation officially started on Monday of last week. This part of Texas is known to have very rocky soils. They got about a foot, maybe a little more, then hit rock. For the past week it has been a lot of jack-hammering. Casey is not a fan of the noise. Her room is …
Hostage Situation
We have said it many times before, but for anyone new to the page, suction is something we rely on HEAVILY!!! That being said, we have backups and backup backups, etc. We have some that run on batteries to use when we are out of the house, or moving around the house, and then stationary …
Weather Bug
This weather has taken its toll on just about everyone. It finally caught up to Casey last week. She started with an ear infection and has been having lots of respiratory issues. No fever, and the stuff she is clearing is out is thick and tons of it, but it’s not the color we would …
2014 Already?
I am not really sure where to start. A lot has happened since our last post (good and bad). We have not been back in the hospital, so that’s good. I guess I will just start where we left off. The weather has been crazy around here. We have had record highs and lows in …
Santa Clause is Coming to Town
We are getting ready for Christmas around here. Casey has been feeling a lot better. She still only has a little energy, so we have to limit what we do, but she is getting there. Last weekend we had our second annual Special Needs Christmas party. She had a good time and got to see …
New Record
Every so often I convince myself I have learned all I need to know to manage Casey’s care. I am always wrong on that one. Sometimes it is big things I have to learn sometimes small, but I am always learning something new. She does like to keep us all on our toes. Over the …