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Last week was pretty quiet around here. We were way over due for a quiet week. We did get back to our busy schedule this week however. In addition to all of Casey’s usual therapies she had a few extra appointments. On Wednesday Casey had an ENT appointment. We had been seeing some drainage and …

Last week was one of the busiest for us. Casey got Phenol injections in both legs last Monday. The doctor said we would see results right away. Sadly I don’t think it did anything at all. We may talk with Casey’s neuro about trying Botox in her elbows since it worked in her hands. I …

It feels like we have been going non-stop all month. Last week was pretty busy. Casey started the week out with a bit of a tummy bug. She came down with it on Sunday and finally late Tuesday afternoon she seemed to be getting over it. Casey’s AFOs were rubbing again and had to be …

Today was Casey’s first official music therapy session. We went to check things out last week, but this week she was able to really participate. Casey LOVES to sing. She sang along to all kinds of songs. It was so cute. She got to play the guitar and bells too. I think she likes music …

In our last post I mentioned that Casey’s ear was finally getting better. I spoke too soon. It was getting better, then it took a turn for the worse. I think we are back on track now. I was hoping to post that it was healed and all is well, but sadly we are still …

Casey has been keeping us pretty busy lately. Between her school therapies starting back up and her usual therapies at Dell we have also been dealing with her wound, ear infection and possible seizures. There has been a lot of appointments over the past few weeks. Casey’s wound is FINALLY starting to heal. Last week …

So the ARD on Wednesday went. It was not good, nor bad, it just went. We are not at a point that I can say we have resolution yet. The district is setting up a medical evaluation with their head nurse as well as some of Casey’s doctors and therapists. This will tell the district …

I met with Casey’s school last week to talk about getting Casey transfered to a Special School. The person that I spoke with agreed that it would be a good idea for Casey. When she went to start the process she was told we have to have an official ARD. On Wednesday I will meet …

This week has been pretty busy. We did get a lot done though. Casey had a good GI appointment on Monday. Since she was sick we have had to go every 2-3 months to GI. After this appointment that doctor felt that Casey has stabilized and we can go back to our 6 month schedule. …

Casey is still taking Flounder with her (and Elly) everywhere she goes. I am not sure if it is because he is yellow, a fish, or from her wish. What ever it is, she loves him. We have been pretty busy around here. Casey’s ear is still not recovered so we have weekly appointments to …