Party guests had a great time taking pictures in the photo booth. Our co-hosts, CPATH Texas, setup a photo booth with all kinds of fun holiday accessories. This was one of many highlights from the party held on Saturday, December 12th at Dell Children’s. [print_gllr id=8253]
Decorating the Tree
It was a beautiful day today! We really could not have picked a better day to decorate the angel ornament tree. We had some great helpers volunteer their afternoons to help us get everything done. The area around the hospital is called Mueller. Mueller graciously allowed us to decorate a tree in the park directly …
8 Gifting Tips for Complex Kids
Buying gifts for kids with complex needs can be tricky. Hopefully these tips can help you find the perfect gift for the special little ones in your life. An easy go-to gift that people love to get all kids is stuffed animals. They are cute, soft and cuddly and you can pick one up just …
Angel Ornament Party
Last night was the second Angel Ornament Celebration. We had a great turn out. The palliative care team hosted the event up at the hospital, sMiles for Sammy brought dinner and we brought all the craft supplies to make the special ornaments. I love to hear all of the families share their memories and wonderful …
Getting Christmas Ready
Casey has been doing a bit better over the past few weeks. She is still on oxygen most of the time, but there have been a few days where she was able to take it off for a few hours here and there. Our nursing situation has improved a lot as well. We have a …
Why Special Needs Parents Say Bah Humbug
We are all very aware that being a parent to ANY child is stressful. There is the financial concerns, constant worrying about their health and safety. Concerns that your making the right choices. Making choices for ourselves if one thing; making choices for a family is really heavy. Many of us know of some of …
To the Newly Diagnosed Family
I am often asked, “If there is one thing you could tell others in the beginning of this journey, what would it would be?” Depending on my day, this answer varies. There are few things I would like to share with that mom or dad whose child was just diagnosed (with anything really- it doesn’t …
Angel Ornament Celebration
A few years ago some of our very close friends lost their little girl. She was VERY much like Casey and we have become very close with this family through our daughters. There is not a day that goes by that we don’t miss Giulianna. Last year we really wanted to find a way to …
We Are Getting There
Casey has been having such a rough time lately, but I am happy to report that the past few weeks have been showing improvements. We are still very short handed (day and night nurses). It is better than it was, and we are still hopeful that we will get our full schedule back in place …