Author: MartyBarnes

I think Casey had a good time at her party Saturday. Most of her Texas family made it over and her Grandma Barnes and Uncle Larry came in from Indiana. Most of her therapists and her nurse made it too. It was a really nice turn out. Casey’s Grandma Barnes and Uncle Larry came in …

We have been jumping through hoops over the past month (+) dealing with our insurance company. They denied medication that Casey needed, then soon after that they denied her nursing care. I was beyond stressed about the nursing care. I won’t go into too many details but it basically came down to a few things. …

We finally have water therapy on our calendar! Next week Casey will go in to meet the therapist. We won’t be in the pool yet. They want to start with meeting Casey and getting an assessment of what we can/should do. Hopefully the week after we will be able to start in the pool. I …

I mentioned a while back that Casey has been having some issues with granulation tissue around her G-Tube. This is common so I am not to worried about it. However she is refusing to stay off of it when she lays down so the tissue just can’t seem to heal. When she lays on it …

It Pours. This is so true. It has been crazy around here. The weather has been awful. There have been rain and hail storms with cold weather followed by hot days followed by cold, just all over the place. Everyone I talk to has either been getting sick or their kids or coworkers are sick. …

Casey’s ENT appointment went well this morning. They did not have to clean her ears this time to see the drum so that was great news. Last time she screamed so much when they cleaned them out. The doctor said that she doesn’t currently have any infections. However, the negative pressure he sees (and has …

We have been running into some issues with our insurance not covering things all of a sudden (I mentioned Prevacid earlier) and it just keeps getting worse. To fight these issues can take a lot of time. In some cases I don’t have time to fight these. We need the service and we can’t do …

Casey had her very first dentist appointment yesterday. We had a few dentists that were referred by her ENT and only one of them was in our network so we decided to start with him. Overall it was a very good experience. The only bad part was that we had to drive way out on …

Friday we called in refills on a bunch of Casey’s medications. One of these was Prevacid. Casey has been on Prevacid pretty much since birth. This medication helps reduce her reflux. On Friday the pharmacy called to tell us that our insurance is no longer paying for this drug and that they wanted to know …

Casey had her pulmonary appointment on Monday. She did pretty good. She is getting much better about going out in her chair. She still hates the car and doesn’t want to be in her chair at home, but out of the house she seems to finally be relaxing a bit in her chair. She had …