Casey has been to a handful of doctor appointments since our last post. Infectious disease has her on a 6 week course of antibiotics to hopefully finally clear out the cdiff. Casey’s neuro changed her medications a little to hopefully get her seizures more controlled. Casey’s GI is helping to keep Casey comfortable with tummy …
Swinging Girl Scout
After our last post Casey was starting to get a little better, but then seemed to take a few steps back. It took us a long time to get her off of oxygen and to a point where her lungs started to sound better. Sadly she had to miss a lot of school, dance, and …
Can’t Catch a Break
This poor kid has had one thing after another for what feels like all of 2014! As soon as we get her over one thing something else comes along. She is overdue for some time off and fun stuff. She had a good week recently and was able to start back up with dance, met …
School, Dance, Nurses and More….
We knew change was coming, but boy did it come. It feels like we have been running in circles these past few weeks trying to get back on a routine. Hopefully in another week or two we will have things running a lot smoother. We have a new night nurse that recently started. This post …
We Need More Candles
Things were going pretty good for a few weeks. Casey seemed to be over all the crud and back to her sassy self. It was really nice. I was stressing about all of the changes coming our way, but I was loving having my spunky girl back to causing trouble. That was until Monday afternoon. …
Change is in the Air…
A quick update first. Casey is doing a lot better. The ear infections have cleared out, and her follow up labs showed she no longer has cdiff. Yay!!! As soon as she got over these though she somehow hurt her hip. They are both dislocated (have been since pretty much birth). We are not sure …
Drum Roll…..
… And, we are positive for Cdiff!!! I think we kind of saw this one coming. It has been a long time since she last had it. Although, it has already gotten a little better. We had 10 stinky diapers Sunday, 4 Monday and only 2 today. The resident working with her pediatrician called with …
Wait… There’s More
Casey’s updates ended up taking much longer than I expected so I figured I would do the rest in a different post. Tim is the youngest of 7 so there are a handful of nieces and nephews on his side. The first niece got married at the end of June. Since we did not have …
Where were we?
Oh, that’s right we were just chatting about our week from HELL in June. Well, since then things did get a lot better. Grandpa did well in rehab and got to go home just in time for 4th of July. That was steak night at his assisted living center so he was really excited to …
Week from HELL
Monday morning came and Casey was still not doing well. Now in addition to needing oxygen at night she was needing some help during the day as well. her seizures were increasing and the amount of stuff she was needing suctioned was out of control. We talked with Casey’s doctor thinking it must be a …