We have been in the ICU since our last post. Casey is having a hard time getting comfortable. Her heart rate has been elevated and she has been a bit whiny (all signs that she’s having pain). She’s getting continuous Morphine now and frequent additional doses. Her heart rate is very slowly coming down. When …
Surgery Underway
Casey was really brave in pre-op. They just took her to surgery. Her home nurse Emily was able to walk back to the surgery room with her – they talked about My Little Ponies until anesthesia knocked her out. Now the hard part of waiting…
Surgery Day
Today is the day. We are heading to the hospital. We went in last week to do the pre-admit paperwork to speed things up this morning. Tim and I did not sleep much at all last night. Luckily, Casey did sleep pretty well. Yesterday was a really bad day, one of her worst in a …
All Clear
We had our pre-op visit today with anesthesia. It went well. The nurse listened very carefully as I went over all of the complex issues that they are going to be dealing with. She quickly identified that Casey is not a typical patient and that they need to be prepared. She pulled the anesthesiologist into …
Pulmonary Cleared
Pulmonary has officially cleared Casey for surgery. We found out her pulmonologist will be on call next week too, that’s good news. We see anesthesia Friday to go over Casey’s complex needs & history then we are all set.
Egg Hunt
Casey was doing okay yesterday morning so we decided to take her to the All Abilities Park in Round Rock for an Easter egg hunt. Some of our friends met us there and loaned us a “little sister” helper to collect Casey’s eggs. We were a little late getting out the door, and only stayed …
Wheelchair
The wheelchair FINALLY came in last week. Since Casey has not been up for much we have not really had a chance to fully evaluate it. She fits much better. We have a few issues that we have contacted the company about. We hope to get the issues resolved quickly. We’ll try to get a …
Surgery
WARNING- This post contains medical details and may not be suitable content for all readers. Many of you have been following Casey since the beginning. For those of you that have not, or anyone just wanting a refresher, I am going to give some background of how we got to where we are today. Again, this …
No More Cast!!!
Casey had her cast removed yesterday. She was not real happy about getting another xray. The xray process is always so hard on her. People never seem to understand that she does not bend and can’t be positioned the way they want her. We got through it though and her foot is healed. We officially …
2013 So Far
I have been really bad about posting lately. It seems like every time I start to get to the computer something else comes up. I have not posted at all in 2013 yet! So much to update, now where shall I begin…. GI Update-We are still fighting with gtube, but it is doing much better …