Casey did really great last night, but her X-ray this morning was bad. Not only is her left lung worse, but her right side is also showing more problems now. She also had breathing / heart rate issues this morning and then spiked a fever. They have started her on antibiotics for a possible infection …
Lungs Continued
Casey had a rough night. I was worried her morning X-ray was going to be horrible. It wasn’t worse, but it was not really better either. The doctors decided we need to be more aggressive. Casey is on bipap for the night. We are doing 3 hours on 3 off to try and minimize any …
Good and Bad Day – we’ll take it
Today started off kinda as we expected based on yesterday and last night – a lot of respiratory and pain issues, high heart rate, etc. and to top it off all three of us were particularly exhausted this morning. We have been doing the IPV lung treatments every 4 hours, as well as a few …
Rough Night
Casey had a rough night, but her numbers look ok right now. They bumped up her continuous morphine rate, so between that and her just being exhausted, she is finally trying to get some sleep (and Marty is out too). One of Casey’s friends unfortunately checked into ICU yesterday too. Please keep Giuliana in your …
Out of Surgery
Casey is out of surgery – it went a little longer than expected but not much. No serious blood loss and they already extubated her. The new J-tube went in fine. There is some concern on how the old G-tube site got closed up, due to the amount of damaged tissue, but they are keeping …
Surgery Underway
Casey was really brave in pre-op. They just took her to surgery. Her home nurse Emily was able to walk back to the surgery room with her – they talked about My Little Ponies until anesthesia knocked her out. Now the hard part of waiting…
Plans B, C, and D
We had another care coordination meeting today with the doctors, but it was much smaller than last week. This is mostly because Casey’s feeding is going well and that’s one less thing to talk about. However, her lung continues to be a real problem that is not responding to treatment. Casey has looked a little …
Moving Forward
Casey had a good night. They started her on what is called BiPap. This machine is designed to force pressure into her lungs on every breath. She started this yesterday (2 hours on 4 off). In addition she was getting VERY aggressive breathing treatments. This morning they came to take the usual morning xray. All …
Closer to a Plan
We had a big meeting today with the entire team taking care of Casey – GI, pulmonary, palliative, ICU, nursing, surgery, etc. We asked a friend of ours to sit with Casey so that we could both participate in the meeting (Thanks, JH). There were about 15 people in a conference room going over our …