Last week I mentioned that Casey got sick Tuesday afternoon. Wednesday she seemed like things were going better. We did not have any fevers, and she was pretty alert. Wednesday night she refused to go to sleep. Her night nurse said she finally went to sleep around 12:30. The nurse also mentioned her lungs sounding …
Muppets
Today Casey had a special treat. The movie theater that did her Make-A-Wish a while back has been great about letting us know when they get kid movies. We were all very excited when they told us the Muppet Movie was coming. The theater told us that the best times to come are Monday or …
Getting Ready for Thanksgiving
This year has flown by. I know I say that every year, but they just keep going by faster and faster. I need to find a way to slow things down (good luck, right). Overall things are going well. Casey seems to have fully recovered from the drug allergy we were dealing with for a …
World Prematurity Day
It’s hard to believe that just a little over 5 years ago Casey came into our lives. I can’t imagine life with out her. Today is World Prematurity Day and I just wanted to write a little something for all of the other families that have, are or will find themselves in the NICU (a …
Halloween
Casey loves Halloween. She wore her Tinkerbell costume to school yesterday. Her teacher brought in 2 of her puppies and dressed them up as well. After school Casey went to trick-or-treat at all of her doctor’s offices. They were all very excited to see her. She had a great time. On our way home from …
Making a Splash
Casey was so excited to get back in the pool this week. When I went to get her out of bed I asked her if she wanted to swim she threw her arms up and started making her happy noises. One of her little friends was in the pool this week too. She loves to …
Slow and Steady
Casey has been off of the “bad” medication for a little more than a week now. She is slowly starting to get back to her usual self. She finally went back to school on Tuesday. She is going to get back to her therapies this week too. She still has some tough spots off and …
Drug Allergies
It has been a little while since we have added a drug to the allergy list for Casey. Sadly, we now have one to add. Back in August we started a new medication that was supposed to help with tone. Casey is so stiff. We started with her hips dislocating due to stiffness, then knees, …
Welcome to CLU
I am so excited to announce a new campaign. You can link to the new site from Casey’s menu – CLU. We will still be posting all of Casey’s stuff here. CLU is set up to provide people with ideas and projects to encourage inclusion in our communities. Our kickoff event is the Trick-or-Treat Project. …
Over the River…
Nope, no river, no woods, just a few blocks for Casey to get to her Great Grandma & Great Grandpa’s new place. My mom and John came in this weekend and helped us get my grandparents moved in to a great new place right around the corner. It is so great to have them close …