Category: Casey

Last week was a long one. Casey woke up around 3:30 AM Monday morning with a 102.8 fever. Ugh! I went in and helped her night nurse start pushing Tylenol & Motrin. We were able to get it down to about 100, but we could not get it back to normal. When her doctor opened …

Casey has been doing well. She has been on a princess kick over the past 6 months or so. I think she has decided she IS a princess. It’s pretty cute. There is not much to report. Casey has been keeping busy with her therapies. No recent doctor appointments. We did have to get her …

Last week Casey had an appointment with her GI. This was the third doctor appointment in a row that went great. Casey is FINALLY back up to 30 pounds (her weight before getting so sick a little over a year ago). The doctor was very pleased with her progress. No changes. I love when appointments …

Wow, we have had 2 great doctor appointments in a row. I posted last time about pulmonary going so well. Last week Casey had an ENT appointment. Usually the ENT has to vacuum Casey’s left ear to clean out the cholesteoma. This is never fun for any of us. It has to be done to …

The holidays are over and we have been busy getting back on schedule. Casey had a pulmonary appointment last week. She did good. This was one of our better pulmonary appointments. I don’t know why, but she usually seems to get worked up right as the doctor comes in to see her. Then I look …

2011! Wow, how did that happen so fast?! We hope that everyone had a nice Holiday season this year. We had a very nice time. The few weeks before Christmas, Casey had a couple visits from some old friends of hers. One of her previous teachers came by for a little bit one evening. Another …

My little baby is so grown up. We have been telling her all about Santa for a few weeks now. She understood that she had to tell him what she wanted for Christmas. At the party this weekend she waited for her turn. When Santa came over to her she was ready for him. The …

I LOVE this time of year. Crisp, cool nights and warm, sunny days. Everyone is getting Christmas lights hung. I don’t know what it is about Christmas lights, I just see them and it makes me happy. We put our tree up this weekend and Tim got the outside lights done last weekend. Now all …

We are back online! We took Casey back to Morgan’s Wonderland on Friday. She had a good time. We took her nurse, Emily, with us this time. We also made it just a day trip. The weather turned out to be wonderful. It was a fun day. Emily took Casey down a slide. We learned …

Our blog is down right now, so I know this won’t be read for at least another week. There has been a lot going on lately so I wanted to blog while things are fresh on my mind. Overall Casey has been having less seizures, or crunches. However, when she does have them they seem …