So Casey out grew her diaper stand around age 1. With her being so long and so stiff there was just no way to get her on the standard baby changing station. We have been making due with the floor, beds, etc. All of the beds in the house have the mattress pads on because …
We’re Home
We are back home. We took a little “vacation” yesterday. In order to get Casey into the Medicaid Waiver programs we had to do a 24 hour stay in a nursing home. We tried to make it as fun as possible for Casey. We called it a vacation and acted like we were headed somewhere …
Casey is 3
I think Casey had a good time at her party Saturday. Most of her Texas family made it over and her Grandma Barnes and Uncle Larry came in from Indiana. Most of her therapists and her nurse made it too. It was a really nice turn out. Casey’s Grandma Barnes and Uncle Larry came in …
So Busy
We have been jumping through hoops over the past month (+) dealing with our insurance company. They denied medication that Casey needed, then soon after that they denied her nursing care. I was beyond stressed about the nursing care. I won’t go into too many details but it basically came down to a few things. …
Water Therapy
We finally have water therapy on our calendar! Next week Casey will go in to meet the therapist. We won’t be in the pool yet. They want to start with meeting Casey and getting an assessment of what we can/should do. Hopefully the week after we will be able to start in the pool. I …
G-Tube Pads
I mentioned a while back that Casey has been having some issues with granulation tissue around her G-Tube. This is common so I am not to worried about it. However she is refusing to stay off of it when she lays down so the tissue just can’t seem to heal. When she lays on it …
When it Rains…
It Pours. This is so true. It has been crazy around here. The weather has been awful. There have been rain and hail storms with cold weather followed by hot days followed by cold, just all over the place. Everyone I talk to has either been getting sick or their kids or coworkers are sick. …
ENT
Casey’s ENT appointment went well this morning. They did not have to clean her ears this time to see the drum so that was great news. Last time she screamed so much when they cleaned them out. The doctor said that she doesn’t currently have any infections. However, the negative pressure he sees (and has …
Waivers
We have been running into some issues with our insurance not covering things all of a sudden (I mentioned Prevacid earlier) and it just keeps getting worse. To fight these issues can take a lot of time. In some cases I don’t have time to fight these. We need the service and we can’t do …