It is really hard to believe, but we have been back in Texas for 6 months now. It seems like we just got here. So Casey and her nurse have been getting along really well. Tim and I decided to go on a date yesterday while she was here. It was the first time in over 6 months that Tim and I went out just the 2 of us. It was nice. We went to dinner and had a good time. Casey has been having trouble with her teeth hurting so she was up all day. She crashed right before we went to dinner and slept almost the entire time we were gone.
We have been moving (slowly) with the new Farrell bags. We started at 60cc an hour (her usual is 40-45). She did about 3 hours @60 with out any problems. The next day we tried her @70. She went another nearly 3 hours really well. The following day she was really junky so we decided to hold off. It is hard on her to be upright for so long, so when she is really junky we felt it was pushing too hard. Anyway, we started back up again yesterday and she did just over 1 hour @75. She wasn’t spitting up, but she was not digging being in her chair yesterday. We are making progress. We did not expect it to happen over night. Hopefully by the end of the summer we will be close to our goals.
We did get exciting news. Casey’s chair is finally on it’s way. We expect to have it in the next week or 2. I can not wait! I really think she is going to like it. We also ordered her stander. The stander is expected to come next week. Lots of new stuff for Casey to start using. I will take and post lots of pics as we get the new equipment in.
Casey’s Uncle Ken was in town this week for work. He came by to visit for a little while in between some of his meetings. Casey loves visitors.
I think that is about all for now. I hope everyone is well.
