We had our pre-op visit today with anesthesia. It went well. The nurse listened very carefully as I went over all of the complex issues that they are going to be dealing with. She quickly identified that Casey is not a typical patient and that they need to be prepared. She pulled the anesthesiologist into …
Pulmonary Cleared
Pulmonary has officially cleared Casey for surgery. We found out her pulmonologist will be on call next week too, that’s good news. We see anesthesia Friday to go over Casey’s complex needs & history then we are all set.
Egg Hunt
Casey was doing okay yesterday morning so we decided to take her to the All Abilities Park in Round Rock for an Easter egg hunt. Some of our friends met us there and loaned us a “little sister” helper to collect Casey’s eggs. We were a little late getting out the door, and only stayed …
Wheelchair
The wheelchair FINALLY came in last week. Since Casey has not been up for much we have not really had a chance to fully evaluate it. She fits much better. We have a few issues that we have contacted the company about. We hope to get the issues resolved quickly. We’ll try to get a …
Surgery
WARNING- This post contains medical details and may not be suitable content for all readers. Many of you have been following Casey since the beginning. For those of you that have not, or anyone just wanting a refresher, I am going to give some background of how we got to where we are today. Again, this …
No More Cast!!!
Casey had her cast removed yesterday. She was not real happy about getting another xray. The xray process is always so hard on her. People never seem to understand that she does not bend and can’t be positioned the way they want her. We got through it though and her foot is healed. We officially …
2013 So Far
I have been really bad about posting lately. It seems like every time I start to get to the computer something else comes up. I have not posted at all in 2013 yet! So much to update, now where shall I begin…. GI Update-We are still fighting with gtube, but it is doing much better …
Holidays & Updates
A lot has happened since our last post. So much so that I have tried to write this many times and have simply not had a minute to sit down and get it done. We have pretty much been going non-stop for a few months now. I won’t go into a lot of detail, but …
Halloween 2012
Casey LOVES Halloween. Each year we get Casey dressed up and deliver goodies to all of her doctors. She has so much fun. It’s nice to see the doctors for fun reasons as opposed to a patient. The staff loves getting to see Casey all dressed up. We have done it enough years now that …
Where to Begin?
I guess I will begin with an apology. I realize it has been well over a month since our last post. We try very hard to do at least weekly updates, but sometimes life just gets in the way. I think I have already said many times recently that 2012 has been a rough year. …