This week has just flown by; for that matter 2010 has flown by so far. Next week is already April!!! My baby is going to be 4. Tim got all of the demo done in the master bath over the weekend. The crew was supposed to start Monday. They got held up on the previous …
Back to Normal
Things are finally settling down a bit for us. Casey has gotten through most of her doctor appointments. It seems like all of February we were just in go-go-go mode. We went a couple weeks with just Monday and Friday nursing after we let our mid-week nurse go. Last week we started training a new …
Updates
Casey’s glasses came in last week. They were super fast. We actually got the glasses before we even got the doctor’s report from the appointment. We are still working on getting them to fit her just right. As soon as we do I will get and post some pictures. They are really cute. We decided …
Busy Month
Casey has been pretty busy this month (and still has a lot coming up). She saw her dentist on the 2nd. That was kind of a frustrating day. We went to him because he is one of the only pediatric dentists in town that treats severely disabled kids. This was our second time to see …
Lots of Stuff
We went to see Dr. Legett on the 20th. This was our first out patient appointment with Dr. Legett. It was great for her to see Casey doing so much better. The appointment went really well. She has an order for Casey to get some stronger pain meds when she needs them. She also referred …
Fun Weekend
Casey had a really great long weekend. On Saturday she watched lots of videos. I had her in her chair and put on “Up” for her. She loved it. Most of it I should say. When the mean dog started growling and being mean in the middle she got a little upset. I picked her …
Back in the Water
Casey started water therapy back up today. She was so excited to be in the pool. That was until Margaret started stretching her legs. Casey really doesn’t like that part. She got through it though and was able to do some swimming. I think she was really happy to be back in the pool. I …
HUGE News!!!!
Today was a great day. Casey had her follow-up pulmonary appointment. He was happy with her xray (no more collapse). We talked about BiPAP and how much she has been fighting it over the past week or so. We talked about her overall status, improvements, risks, etc. After going over everything the doctor decided to …
Latest Updates
Casey had a really nice Christmas. We hope all of you did as well. She got lots of new toys, clothes and books. All of her favorite things. Last week we had her ENT appointment. The appointment was way over due. I knew it was going to be rough. Casey was really upset that he …
Update
A few things have happened since our last post. Casey had her follow-up chest xray last week. The doctor said it looks a little better, but still needs some work. For now he wants us to continue the course. We are doing lots of breathing treatments and she is still on BiPAP all night. Last …