A lot has happened since our last post. Casey has started school, and dance. I have been wanting to update on these things, but at the same time that Casey was starting all of these new things, we were also saying goodbye to my grandmother (see previous post). Needless to say, it has been a very emotional (good and bad) week and half for us.
Casey started school last week and has a new teacher this year. The new teacher seems pretty nice. She has not worked with medically complex kids like Casey, but she seems open to learning from Casey’s nurses and therapists. Casey was really excited about going to school and had a good first day. She was excited to see her princess tent and some of the therapy toys she really likes. I think it will be a good year for our little first grader.
This week Casey started dance. She had the tutu and ballerina bun and was ready to go. She was really funny. There was a little girl with a toy microphone that kept putting it in front of Casey. As soon as she would Casey would sing and sing. She does love to sing. I think she had as much fun singing with her new friend as she did dancing. She was so excited all day, then gave it everything she had. On the way home she crashed. I think she is going to really like dance. Her grandma was in town and got to go with us. I think she enjoyed it as much as Casey did too.
Casey has been having a rough couple of days. Sometimes when her schedule is out of whack she has a hard time adjusting. We are going to have a quiet relaxing weekend. Hopefully that will get her back to her usually spirited self. Next week she has music, dance, school and therapies scheduled. It will be the first full week of her new schedule. I think it may take a few weeks to get into the groove (for all of us). She is only in school for 2 hours 3 days a week though, so it’s not too bad.
We hope that everyone is well, and thank you again to everyone for all of your support while we were going through a really hard time saying goodbye to my grandma. We appreciate all of the kinds words, cards, and prayers.
|Casey working hard with OT on her first day of 1st grade|
|Casey with Mom & Dad on her first day of 1st grade|
|Casey’s first day of dance with some new and old friends|