Author: MartyBarnes

Casey had a really good Texas Christmas. Santa brought her a fish. His name is Al. Tim found a little pink aquarium and everything. Casey seems to like her new pal Al. This was her first Christmas with family. She had a lot of fun. She wore herself out and ended up sleeping while we …

So last week Tim was in India for work. While he was gone Casey and I were pretty busy. On Monday we interview 2 new nurses. Then Tuesday Casey’s old nurse (Laura) came over to play so I could get out of the house a little while Tim was gone. Then Wednesday I started training …

It has been pretty crazy around here. We are in between nurses still. With the holiday this week the agency has a few nurses they want to meet but scheduling it is a problem. Hopefully next week if I can meet them one will turn out to be who we need. One of the hardest …

We have a home otoscope that we use to keep an eye on Casey’s eyes. A few months back we could no longer see her left ear tube at all so we figured it fell out. Shortly after that she got a small ear infection and we figured that just confirmed our original thought. About …

I keep putting off posting because I want to post with a new pic, but we have not had the camera handy while Casey is in a photo mood and when we do have it she is not interested in posing at all. I will hopefully get a new pic soon and will just post …

We just got home from the ENT. Casey did really good. He checked her ears and said in general they both look really good. The left tube has been gone for a while and the right one was close enough to the opening of her ear that he did go ahead and pull it out …

We just got home from Casey’s Halloween Party. She got her face painted and was able to see lots of her friends. It was pretty loud and crazy so we did not stay real long. This year appears to be the year of the fairy. Casey picked her Flower Fairy costume out herself and then …

We had a rough couple of days, but I think we are finally out of the rut. So we have 2 suction machine for Casey. One that is a little more portable that we use during the day then another larger backup one that we keep in the bedroom and use at night. Anyway, the …

Oh, I have not posted in a while. What a crazy few weeks we have had. Shortly after my last post Casey got really sick. She had fevers, crying all the time, her secretions were really thick and nasty, and she was just miserable. We had to take a culture already to get a new …

Last week Casey went in for her pulmonary follow up. The appointment went well. Casey was really good and her doctor was happy with how she is doing. He ordered a new culture that we had to have sent to us so while Casey’s nurse is here this week we will get it done. Based …