Author: MartyBarnes

We have quite the busy week this week. Tim bought a new Nissan Quest (minivan) to help with transporting Casey. We have been trying to take her for rides to get her used to it. So far she seems much happier in it than she ever was in the Xterra. I was sad to see …

So it has been a few weeks since Casey had her stem cell injection. They say over the first month or so the changes that we will see will be due to a growth hormone that her body is triggered to produce while the stem cells are getting into her system. Then after 3-6 months …

We made it! The trip went much better than we had expected. 405 in LA county is really rough, so she started out pretty upset. I sat with her in the backseat (as usual) and I was able to stay on top of suctioning and keep her calm. By the time we got to the …

Well, we are just about loaded up and ready to hit the road. We should be well on our way by 8:PM tonight. We are heading to San Diego for the night, then at 11 tomorrow morning we will be picked up at the hotel and head over the border. We are tentative for a …

Oh wow, it has been nearly a month since our last post. Let’s see, where did we leave off? Tim mentioned that we are looking into stem cell injections for Casey. We are finalizing all of those details now. It looks like we will head to San Diego after Tim gets off work and traffic …

Casey had a nice visit with her Cappy. My mom came in for Thanksgiving and stayed for a few days to spend some time with Casey. On Wednesday before the holiday Casey had her 7 month shots (with the second half of her flu shot). She had never had a bad reaction to the shots, …

We complete our 20th HBO session at 2:30 today. They told us that around 20 is when we should expect to start seeing changes. We have been able to increase Casey’s food, and she has become much more vocal in the past few weeks. It’s possible those are due to HBO. We have noticed in …

It’s been fairly quiet on the home front. We had a crazy few weeks, but we are settling into our new routine now. Casey is doing good with HBO. At first she would wake up a lot and shift around. Now that she is used to it she sleeps thru the entire session. She normally …

Casey and I are trying to take advantage of this week being a slow one as the next few weeks to follow are going to be very busy for us. Casey’s new PT started this week. I like the new one a lot. She jumped right in and started working on plans for Casey’s legs …

Our orthotics appointment went really well. The specialists really worked with Casey a lot and had some great ideas. She is writing up some recommendations, then we just have to get scripts from our pediatrician and then we will be set. One of the main things she wants us to try is called theratogs (http://www.theratogs.com/howitworks.html). …