Author: MartyBarnes

After a really long and hard winter Casey finally had a long over due good week.  She was up for playing with her toys, she worked hard for her teacher and therapists, she went to all of her scheduled appointments, and she finished up her week with a visit to the new aquarium.  She met …

The pool installation officially started on Monday of last week.  This part of Texas is known to have very rocky soils.  They got about a foot, maybe a little more, then hit rock.  For the past week it has been a lot of jack-hammering.  Casey is not a fan of the noise.  Her room is …

We have said it many times before, but for anyone new to the page, suction is something we rely on HEAVILY!!!  That being said, we have backups and backup backups, etc.  We have some that run on batteries to use when we are out of the house, or moving around the house, and then stationary …

This weather has taken its toll on just about everyone.  It finally caught up to Casey last week.  She started with an ear infection and has been having lots of respiratory issues.  No fever, and the stuff she is clearing is out is thick and tons of it, but it’s not the color we would …

I am not really sure where to start.  A lot has happened since our last post (good and bad).  We have not been back in the hospital, so that’s good.  I guess I will just start where we left off. The weather has been crazy around here.  We have had record highs and lows in …

We are getting ready for Christmas around here.  Casey has been feeling a lot better.  She still only has a little energy, so we have to limit what we do, but she is getting there.  Last weekend we had our second annual Special Needs Christmas party.  She had a good time and got to see …

Every so often I convince myself I have learned all I need to know to manage Casey’s care.  I am always wrong on that one.  Sometimes it is big things I have to learn sometimes small, but I am always learning something new.  She does like to keep us all on our toes. Over the …

The past month or so has been all over the place.  Casey will act like she is getting sick, then as soon as we are ready to call the doctor she has a great day.  The great days became less and less and eventually turned into not so bad hours so we did get her …

On Facebook it is pretty common to see people post “days of thanks”.  Each day from November 1st through Thanksgiving they will post something for which they are thankful.  I like to read these, but I don’t usually post them myself.  It’s been a rough year for us and I am feeling especially thankful right …

I love this time of year.  The weather cools off a little, but not too much.  You can go outside without melting.  When you get in your car, you don’t burn yourself with the metal from the seat belt.  Fall is definitely my favorite season.  Casey really likes this time of year too.  She has …