Casey had to miss the trunk-or-treat yesterday. We were really hoping she would be up for going, but she was having another rough day. Trunk-or-Treat is something that I heard a lot about last year. It can be any group of people/businesses that get together and line up their cars. They all have treats in …
90th Birthday & More…
For all of you that know us, you know we are big fans of Halloween. Growing up it was always one of my favorite holidays. Casey has not been feeling well off and on for a few weeks now, so we have not picked out her costume yet. She is gong back and forth between …
Bedroom, School, Dance and More…
Casey’s room is all setup. She loves it. When we take her to bed at night she is so happy to be in her fairy room. This morning her nurse had to drag her out of bed at 8 (that’s really late for Casey). She has little fairy touches all over the room along with …
Where’s Casey
We don’t have blinds installed yet & Casey has not been happy about the afternoon sun. She has discovered home made tents (with the help of her nurses). Can you find Casey?
Our New Home
We have moved!!! Monday after work Tim and I started loading the truck (& worked through the night). Tuesday we had some scheduling issues with nursing so Casey ended up going to closing with us. As soon as we got the keys we headed to new place to start unloading. Luckily we had a nurse …
What Was I Thinking?
Every 6 months Casey has to see ALL of her doctors. She sees some every 2, 3 or even 1 month, but without fail at that 6 month point she is due to see them all. I somehow managed to schedule ALL of her 6 month appointments starting last week going through the 1st week …
We’re Moving!!!!
As many of you may know, we have been trying to find a single story home for Casey for a while now. The bigger she gets the more space she needs and we are running out of room on our first floor here. Well, I am very excited to announce that we have found a …
You Have to be Kidding Me!!!
Not even an hour after I posted how we finally have a nurse that we like picking up 2 days a week, I get a call from our agency saying that she can only do 1 day, and it is much shorter than we had planned. Ugh!!! I guess 1 short day is better then …
Guiliana
Yesterday was a beautiful and heartbreaking day. Guiliana’s service was yesterday afternoon. We were able to get Casey’s nurse to come in so that Tim and I could both go to the service. It was beautiful. They had a picture slide show that showed so many wonderful special memories through Guili’s 6 years. Guili’s dad …