The respiratory team has Casey using a special kind of vest that hooks up to some air pumps that vibrate her chest quickly from all sides. This is suppose to help her lung heal, and she seems to be tolerating it pretty well. With as much as she hates vibrations riding in the car, we …
Things have been crazy here, but we’ll try to give as many details as we have right now. We brought Casey back to the hospital on Thursday because her GI bleeding had returned and her pain was not manageable, even with our greatly increased medications. The only thing that relieves her pain is turning off …
Casey had a much more comfortable night (lots of drugs) and we have started her back feeding. The plan is to slowly increase food and decrease what she is getting through IV. We haven’t suctioned any more blood in a while, so at least the acute areas seem to be doing better. Hopefully today we …
Last night and today have been trying. Casey isn’t responding well to her food and pain medications, so we have been working continously with her doctors to find the right balance of everything. Her blood work and xrays still look fine, but she has been very upset, and her heart rate and oxygen levels are …
Casey did great today – the only hiccup in the procedure is she lost her first tooth during intubation, but it was already very loose. They found a lot during the scope that we still have to discuss with surgery. The fundoplication from when she was 1 month old has failed and her g-tube placement …
We are at Dell Children’s Hospital – Casey has been admitted due to some bleeding either in her throat or stomach. She has an endoscopy scheduled for 10:30am – they will have to intubate. After we have those results, we will figure out next steps. Surgery sounds likely, but the specifics depend on what they …
Casey is in recovery and doing very well – there is a problem with her left ear so a small change of plans during surgery – more on that later…Everyone here has been great, and since intubation wasn't needed, we should get to come home this afternoon.
Just to let everyone know that Marty is home from surgery and is recovering quickly, as usual. I spoke with the doctor and everything went smoothly. The adhesion scars between the uterus and bowel were quite large at the site where the rupture occurred when Casey was born, so this seems to be what has …
And even 1 day ahead of schedule, thanks to how awesome Casey did on the trip, we are at the house and starting to unpack!For any of you locals give us a call – we can work out a beer for work program tonight ;-)Tim===
