Busy Busy Girl

I have so many updates for this post I don’t even know where to begin. I guess I will start with the ramp. We have sent emails to all of the people that have donated to the ramp fundraiser. After we started to move forward we hit a major road block with city permits. The …

Moving Along

Just 1 and a half more weeks until we move to the short cast. Casey has been doing really good. I am sure she is excited to get them off, but she has not been to fussy with them on. It has finally cooled off so that helps a lot. Casey’s cranio therapist drew her …

Halloween Party

Casey had a very fun day today. We all went to the Kids Carnival in Culver. It was really nice. They put on a special carnival for special needs kids every year. There were kids of all ages there. Casey really had a good time. They had face painting, games, a duck pond, and karaoke. …

Ears

Casey had tubes put in her ears a little over a year ago (10/17/06). When we had this done we were told that they would work their way out over the next 9-12 months. We were also told that some children need to have them redone. Casey did not seem to have ear pain, they …

Busy girl

Casey is getting back to normal. She started PT again this week and we will get back to OT and cranial next week. We had our 1 week surgical follow up yesterday. The doctor said that everything looks great. He was really happy that she was able to go home only 2 days after the …

Recovering

Casey seems to be very happy to be home. She is starting to get back to her usual self. She has found a way to roll her upper body so she can still get her face smooshed into things. We have figured out ways that we can hold her with out hurting her. As anyone …

Little Rooster

Would you look at the cutie showing off her long hair?!Casey is doing good this morning. Last night she had some minor heart irregularities that turned out to be a fluid/electrolyte balance issue. We have seen this during other hospital stays, so when they said they needed to give potassium and a couple other things, …

Tube is out

They extubated late this morning – they have to almost stop pain meds during this just in case there is trouble breathing. Casey struggled a little, but eventually calmed down and now she is doing much better. No word yet on when we will move out of ICU and onto the floor unit – it …

Surgery done!

Casey is finally out of surgery and settled in ICU. Things took a little longer than expected, but everything did go well. She is still intubated, but is on low “pressure-assist” mode with minimal oxygen, so they are optimistic that she can be extubated in the next day if she continues to do well. We …