Sorry it’s been so long since we have posted – it’s been pretty busy here. Casey has finally passed the 10 pound mark and looks so much different every week. She is still usually at 20ml/hour continuous feeding and she isn’t gaining nearly as fast as her doctors want, but the surgeon and GI doctors …
Our Growing Girl…
Our little girl is getting bigger. Casey is 9 pounds 5 ounces now. She hit a period where she just maintained the same weight for weeks, but she is finally gaining again. We actually found some clothes she is starting to outgrow. It has been a pretty busy few weeks for Casey. Her GI specialists …
Latest Update
(check out those lashes…) It has been a while since our last post, no good excuses, we just haven’t done one. Anyway, what’s been going on in Casey Land… Casey is getting stronger every day. She has started rolling herself over (not completely but from side to side). She is holding her head up some. …
Happy Father’s Day
I LOVE having Casey home. I can’t believe a full week has already passed. It stills seems kind of surreal. Casey is still having a hard time adjusting to a normal day. There wasn’t really a day and night in the NICU so she is often wide awake at night then sleeping all day. We …
Casey is finally home!!!!
After 7 weeks and 2 days we finally got to bring our little angel home. What a great day it has been. I picked Tim up at 3:PM then we went to pick her up. We were home shortly after 5:PM. It was so exciting to pull the monitors off of her. We put her …
Starting to plan for coming home!
Casey finally had her last IV removed today! It was her PICC line went all the way up her arm and into her chest – by far the one we wanted out the most and of course the last one to come out. Since she is getting all her nutrition through her g-tube and finished …
6-7 Week Update
I have fallen a bit behind in my posts 🙁 Let’s see, what all has happened since the last post…. On Friday (a week ago) they moved Casey to what is called the step down room. They have the main room for the sicker babies, but as babies become more stable they are moved to …
Extubated and Feeding
Today was a huge day. Casey finally got her ventilator out today. After her surgery they kept it in and decided to keep it in until she was able to eat. However, after surgery Casey had some issues that caused the doctors to postpone feeding her through the tube, which meant she had to keep …
Casey’s Surgery Update
Casey has had a really busy week. She got all settled in her new bed at UCLA around 1:AM Wednesday morning. Tim had to be at work by 8:00 Wednesday so we did not get much sleep. I dropped him off then went up to UCLA to spend the day with Casey. She and I …