Category: Casey

We have always joked that Casey has been a diva since she arrived.  She has a way of getting everyone’s attention and making everyone fall in love with her.  She has even upstaged some big celebs. The hospital where Casey was born was known through out the Los Angeles area as one of the celebrity …

We LOVE Halloween and decided that this year we wanted to throw a little party.  The party was so much fun.  Casey had a blast.  Everyone wore costumes, and I have to say I was really impressed with how great all of our friends costumes were.  We had trophies for the best group, kid and …

Casey has been to a handful of doctor appointments since our last post.  Infectious disease has her on a 6 week course of antibiotics to hopefully finally clear out the cdiff.  Casey’s neuro changed her medications a little to hopefully get her seizures more controlled.  Casey’s GI is helping to keep Casey comfortable with tummy …

After our last post Casey was starting to get a little better, but then seemed to take a few steps back.  It took us a long time to get her off of oxygen and to a point where her lungs started to sound better.  Sadly she had to miss a lot of school, dance, and …

This poor kid has had one thing after another for what feels like all of 2014!  As soon as we get her over one thing something else comes along.  She is overdue for some time off and fun stuff. She had a good week recently and was able to start back up with dance, met …

We knew change was coming, but boy did it come.  It feels like we have been running in circles these past few weeks trying to get back on a routine.  Hopefully in another week or two we will have things running a lot smoother. We have a new night nurse that recently started.  This post …