We Need More Candles

Things were going pretty good for a few weeks.  Casey seemed to be over all the crud and back to her sassy self.  It was really nice.  I was stressing about all of the changes coming our way, but I was loving having my spunky girl back to causing trouble.  That was until Monday afternoon. …

Change is in the Air…

A quick update first.  Casey is doing a lot better.  The ear infections have cleared out, and her follow up labs showed she no longer has cdiff.  Yay!!!  As soon as she got over these though she somehow hurt her hip.  They are both dislocated (have been since pretty much birth).  We are not sure …

Drum Roll…..

… And, we are positive for Cdiff!!!  I think we kind of saw this one coming.  It has been a long time since she last had it.  Although, it has already gotten a little better.  We had 10 stinky diapers Sunday, 4 Monday and only 2 today.  The resident working with her pediatrician called with …

Wait… There’s More

Casey’s updates ended up taking much longer than I expected so I figured I would do the rest in a different post. Tim is the youngest of 7 so there are a handful of nieces and nephews on his side.  The first niece got married at the end of June.  Since we did not have …

Where were we?

Oh, that’s right we were just chatting about our week from HELL in June.  Well, since then things did get a lot better.  Grandpa did well in rehab and got to go home just in time for 4th of July.  That was steak night at his assisted living center so he was really excited to …

Week from HELL

Monday morning came and Casey was still not doing well.  Now in addition to needing oxygen at night she was needing some help during the day as well.  her seizures were increasing and the amount of stuff she was needing suctioned was out of control. We talked with Casey’s doctor thinking it must be a …

Father’s Day

Casey started to look a little better Monday and even better on Tuesday.  By Wednesday she was doing well enough to meet some of her friends for an arts and crafts play date.  They made crafts for their dads with Father’s Day coming up.  Sadly, Tim is not going to be home for Father’s Day.  …

Pittsburgh

I made it to Pittsburgh!  It has been a long time since I have gone anywhere and 2 nights away from Casey is the most I have ever done.  This trip is actually pretty exciting for me.  When I merged CLU with MOM a while back I have a business partner now, Anita.  We have …

May Wrap-up

A lot has happened since our last post.  I started to write one big update on everything and realized it was a bit too long.  Instead I am going to break things up into a few posts. Toward the end of May Casey had some signs of a possible urinary type infection (this was new …

Casey’s Super Fun Weekend

Casey has had a wonderful long weekend.  Thursday got off to a rocky start, but we made it to water therapy around lunch time and that seemed to turn things around.  Her PT is going to teach Tim and I how to do as much of the water therapy exercises as we can so that …