Last night was the first night all week that we were all able to get a little (not a lot) of sleep. Casey was more comfortable than she has been in a really long time. We are able to skip 1 treatment that results in about 6 hours that we don’t have to mess with …
Good and Bad Day – we’ll take it
Today started off kinda as we expected based on yesterday and last night – a lot of respiratory and pain issues, high heart rate, etc. and to top it off all three of us were particularly exhausted this morning. We have been doing the IPV lung treatments every 4 hours, as well as a few …
Lungs and IVs
We got Casey’s pain meds managed much better yesterday, and she was sleeping great, but in the middle of the night she was non-stop with suctioning and crying. Her heart rate was up and quick shallow breaths. We could not get her to cough anything up, and the tube that is in her nose makes …
A Little Better
This morning started out a bit rough after a really long night. I laid down to get some sleep while Tim sat with Casey. I was so happy to wake up to a much happier baby. I think she just wanted some daddy time. She was still a little restless, but settled down and got …
Rough Night
Casey had a rough night, but her numbers look ok right now. They bumped up her continuous morphine rate, so between that and her just being exhausted, she is finally trying to get some sleep (and Marty is out too). One of Casey’s friends unfortunately checked into ICU yesterday too. Please keep Giuliana in your …
Out of Surgery
Casey is out of surgery – it went a little longer than expected but not much. No serious blood loss and they already extubated her. The new J-tube went in fine. There is some concern on how the old G-tube site got closed up, due to the amount of damaged tissue, but they are keeping …
Resting in her Room
We have been in the ICU since our last post. Casey is having a hard time getting comfortable. Her heart rate has been elevated and she has been a bit whiny (all signs that she’s having pain). She’s getting continuous Morphine now and frequent additional doses. Her heart rate is very slowly coming down. When …
Surgery Underway
Casey was really brave in pre-op. They just took her to surgery. Her home nurse Emily was able to walk back to the surgery room with her – they talked about My Little Ponies until anesthesia knocked her out. Now the hard part of waiting…
Surgery Day
Today is the day. We are heading to the hospital. We went in last week to do the pre-admit paperwork to speed things up this morning. Tim and I did not sleep much at all last night. Luckily, Casey did sleep pretty well. Yesterday was a really bad day, one of her worst in a …