Casey has had a pretty good week. She LOVES Valentine’s Day. She was so excited to make her Valentine at school on Monday. When I was getting her dressed Tuesday I asked her if she was going to bring it home that day and she was so excited. Her nurses that worked that day brought …
Long Overdue Post
Wow, it’s been a while since my last post. The good news is that there is not much to report. It has been a rough winter for Casey. It seems like she gets sick with something, then as soon as we get her over it she gets sick with something else. Luckily none of these …
Success
I am very happy to report that we are HOME! Casey did amazing. They were able to place the tube in the right ear. I was really worried it was going to become another cholesteotoma. The doctor cleaned out the left ear’s cholesteotoma and said that in general it is doing pretty well. We still …
Ready for Surgery
We spoke with the hospital today and we are all set for Casey’s procedure tomorrow. Her dentist wants to get some images of her permanent teeth (just to have a better idea of what is going on) while Casey is under. The initial ear procedure was scheduled quickly to reduce the window for the ear …
Those Darn Ears
Back in June 2009 Casey went in for routine ear tube surgery. When the ENT got in he found that her left ear had a Cholesteotoma. The doctor put the right tube in and from that point on we had been going in to see ENT every 3 months to have them clean out her …
Teeth
Last week was a busy week for Casey. We expected with it being the week before Christmas that it would be slow, but we were wrong. Casey had school Monday and Tuesday. A dentist appointment on Wednesday. Casey saw the ENT and had therapy on Thursday and therapy on Friday. Casey loves going to the …
Merry Christmas
It’s official, Casey LOVES Christmas. She was really into it this year. While we were in the kitchen getting dinner ready, she wanted to come in and be in the middle of the conversations. When we ate dinner, she wanted to sit at the table. When it was time for presents she was wide eyed …
Back to School
Casey is finally recovered enough to go back to school. I was hoping she would go yesterday, but we couldn’t get her to stay awake. The antibiotic seems to have helped clear out her lungs some (we are still clearing out a little- but she is feeling much better). Now that she is finally able …
Update
Last week I mentioned that Casey got sick Tuesday afternoon. Wednesday she seemed like things were going better. We did not have any fevers, and she was pretty alert. Wednesday night she refused to go to sleep. Her night nurse said she finally went to sleep around 12:30. The nurse also mentioned her lungs sounding …
Muppets
Today Casey had a special treat. The movie theater that did her Make-A-Wish a while back has been great about letting us know when they get kid movies. We were all very excited when they told us the Muppet Movie was coming. The theater told us that the best times to come are Monday or …