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For any of the special needs family that read this blog, I want to be sure you know about 2Dance2Dream by Legacy of Hope. I LOVE this idea. They will work with your child’s ability and needs (all types). Premier Dance in South Austin has teamed up with Legacy of Hope to offer dance class …

July was a hectic month for us. Tim had to travel for work one week. Our day nurse had 2 weeks off (luckily not the week Tim was gone) and our night nurse had a week off. There were 2 weekends our weekend night nurse had vacation too. I really miss Tim and our nurses …

We have been so busy this summer. We have a few weeks with fewer appointments so we decided to have some fun activities planned for the princess. Today we met some friends for lunch at Casey’s favorite restaurant. Her friend made her a beautiful bracelet with beads and pasta. In the picture they are modeling …

We got Casey’s new pillow on Thursday (6/30). The rep met us at therapy and he and Margaret helped me and Casey’s nurse make a bunch of adjustments to the pillow and her chair. The pillow was much smaller than I expected. It does help. I think Casey is much more comfortable and she is …

As many of you already know, Casey LOVES music. A while back she was very into hip hop. Which was really funny as no one around her was listening to hip hop, and we had no idea where she got it. A friend of ours turned us onto an album that we played many times …

Casey was picked as this month’s Highlight story on Hand to Hold. If you are on Facebook you can “like” the story. Also, the next Lunch and Learn has been set. If you are interested in attending please be sure to RSVP. Casey has a new pillow system that we are getting fitted Thursday. It …

This summer got started and has not let up yet. We have already had multiple 100+ days. Since Casey (and I) and not big fans of being hot, we are staying inside as much as possible. I think we are going to have to have me or her nurse go start the car after therapy …

A while back I was given a packet with all kinds of great ideas for the Blind and Visually Impaired. Casey and I have made a few of the toys and activities from the packet. I have uploaded a copy of the document and added it to the downloads section of this site. Feel free …

Wow, it’s been a while since I last posted. The last weekend in April was a pretty big deal. Tim and I took our first overnight trip, without Casey. We had a team of nurses scheduled, and others as backup (just in case). We left that Friday around lunch, and got back Saturday afternoon. We …