Just 1 and a half more weeks until we move to the short cast. Casey has been doing really good. I am sure she is excited to get them off, but she has not been to fussy with them on. It has finally cooled off so that helps a lot. Casey’s cranio therapist drew her …
Halloween Party
Casey had a very fun day today. We all went to the Kids Carnival in Culver. It was really nice. They put on a special carnival for special needs kids every year. There were kids of all ages there. Casey really had a good time. They had face painting, games, a duck pond, and karaoke. …
Recovering
Casey seems to be very happy to be home. She is starting to get back to her usual self. She has found a way to roll her upper body so she can still get her face smooshed into things. We have figured out ways that we can hold her with out hurting her. As anyone …
Surprise, we’re heading home!
Casey had an awesome day and she is being sent straight home from the ICU instead of going to the floor unit first. We are very excited to say the least. We are loading her up now and should be home in an hour or so!
Little Rooster
Would you look at the cutie showing off her long hair?!Casey is doing good this morning. Last night she had some minor heart irregularities that turned out to be a fluid/electrolyte balance issue. We have seen this during other hospital stays, so when they said they needed to give potassium and a couple other things, …
Tube is out
They extubated late this morning – they have to almost stop pain meds during this just in case there is trouble breathing. Casey struggled a little, but eventually calmed down and now she is doing much better. No word yet on when we will move out of ICU and onto the floor unit – it …
Surgery done!
Casey is finally out of surgery and settled in ICU. Things took a little longer than expected, but everything did go well. She is still intubated, but is on low “pressure-assist” mode with minimal oxygen, so they are optimistic that she can be extubated in the next day if she continues to do well. We …
At the hospital
Casey is sleeping and we are in the waiting room at Children's Hospital. Her surgery is scheduled for 5 hours starting at 9:30am PST, so we will post more afterwards when she is settled in ICU.