Casey has passed the 16 pound mark. In the past couple weeks she has really been having a growth spurt. She passed 16 a couple days ago and is still going strong. She is getting really long too. When Tim holds her up on his shoulder her feet are already down to his waist. She …
Updates
Casey and I seem to be getting busier and busier. We seem to keep adding more and more therapies, specialist, treatments, etc. Every time I think we have everything set up something new gets added to the routine. Everything is going really well, just very busy. We are still making progress (slow, but steady) on …
1st Birthday Party
I can’t believe it but our little angel is 1 year old. What a year!!! She is doing really great. Her botox injections were last week. They said it could be a week or two before we see a difference. So far there is not any major changes. Her left legs seems like it may …
Casey finally home
After a lot of discussions, we have the doctors agreeing with us that Casey is better off continuing her recovery out of the hospital, so we brought her home today. She is so much happier with all the noise and people bothering her and wires all over the place. She is already moving around a …
Out of ICU
Good news – we have finally been moved out of ICU and into a normal room. It looks like if all goes well we will be going home next week. Casey is still having problems with apnea, but the pneumonia seems to be almost gone, and she is much more comfortable since a few of …
Off the ventilator, seizures, apnea
Well, finally yesterday they decided to try Casey off the ventilator, since she had a couple days of lab work and chest xrays getting better. Since they took out her tube, she has been having a lot of trouble keeping a consistent saturation of oxygen in her blood – nothing extremely low, but below the …
Back in UCLA ICU
As many of you know, Casey was taken to the UCLA Medical Center on Monday after having difficulty breathing. They admitted and gave her oxygen while they waited for xrays and test results, which showed that she had an infection in her chest. Pneumonia has always been the biggest risk for children with severe HIE …
A Few New Details
So it has been a few weeks since Casey had her stem cell injection. They say over the first month or so the changes that we will see will be due to a growth hormone that her body is triggered to produce while the stem cells are getting into her system. Then after 3-6 months …