Author: MartyBarnes

Poor Casey is going to have to wait to see her ENT. I called Monday morning to try and get her in this week instead of our previous date next week. I was told that they were going to call me that day already to reschedule, but not for earlier for later. The doctor is …

Last week we went to an orthopedic doctor here in Austin. Happily I am reporting that we really liked him and his team. It will be much easier to go up the street instead of all the way to Houston. Not to mention, with him here he is in the same group as her other …

This is the first minute I have had to sit all day. Casey had vision, speech and physical therapy today. We pulled the Theratog back out and she wore it for most of the morning. When PT got here she helped me get the stander all set up. I was way off. I am glad …

Casey had a busy week last week. On Monday she had a couple of therapies. Tuesday she and I went swimming. On Wednesday she had therapy and then that evening her stander showed up. On Thursday her nurse was here. Us girls drove loaded up Casey’s new chair and headed down to my old company. …

No real news to post right now. We had a nice quiet 4th at home. Casey is still having a little trouble with teething. There are so many coming in right now that it is causing a lot of extra secretions. With all the secretions we have had to suction a lot. Because of all …

It’s finally here. We have been waiting so long and Casey’s chair finally came in today. It is such a great fit. There were a bunch of custom add on just for her. With all the customizations she can say she has a pimped out ride 🙂 She fits perfectly in it, and it will …

Casey has been doing really good. She and her new nurse have been getting to know each other. We all went swimming yesterday morning. Casey showed Laura how well she can float. After swimming Casey had 2 therapies scheduled and had to get a bath. With such a busy morning she crashed right as her …

It is really hard to believe, but we have been back in Texas for 6 months now. It seems like we just got here. So Casey and her nurse have been getting along really well. Tim and I decided to go on a date yesterday while she was here. It was the first time in …

After a few crazy weeks we are finally getting back to normal. Now that Casey is off all of her extra treatments and meds we can start to get back to our previous goals. We finally started to use the Farrell bags again today. Since we just started back up I can not give info …

Casey had a fun weekend. Her cousin Riley, Aunt Molly, Cappy, John and great grandparents all came over on Saturday. This was her first chance to meet Riley. They have been living in Lubbock and not able to make the trip down to Austin until now. They are in the process of moving to Dallas …