Author: MartyBarnes

Casey had a very fun day today. We all went to the Kids Carnival in Culver. It was really nice. They put on a special carnival for special needs kids every year. There were kids of all ages there. Casey really had a good time. They had face painting, games, a duck pond, and karaoke. …

Casey had tubes put in her ears a little over a year ago (10/17/06). When we had this done we were told that they would work their way out over the next 9-12 months. We were also told that some children need to have them redone. Casey did not seem to have ear pain, they …

Casey is getting back to normal. She started PT again this week and we will get back to OT and cranial next week. We had our 1 week surgical follow up yesterday. The doctor said that everything looks great. He was really happy that she was able to go home only 2 days after the …

Casey seems to be very happy to be home. She is starting to get back to her usual self. She has found a way to roll her upper body so she can still get her face smooshed into things. We have figured out ways that we can hold her with out hurting her. As anyone …

We are cleared for surgery on Tuesday. We do not have a time of day yet, but Casey will get her feet and ear tubes done in just a few days. We have made sure that everyone is VERY aware of previous issues as well as all of her current risk factors. Our biggest concern …

Looks like surgery is going to be on the 9th instead of the 2nd. We were so close to having those feet fixed. Casey, Tim and I have all been pretty sick this week. We talked with Ortho today and they said that with her being high risk already that they did not want to …

First of all I need to say thank you to all of Casey’s supporters. The response to her new website has been nothing short of amazing. We really appreciate everyones support. We have the last few features online now. Be sure to sign the guestbook to let Casey know you were here. Now on to …

Casey’s new site is online. We are still working on a few features and minor changes, but the bulk of the site is ready to go. Please use www.caseybarnes.org for Casey’s site. Over the next few days we should be getting everything activated and a few minor tweaks worked out so you will see a …

Things are finally getting back to normal. Casey has been really busy, but all good stuff. Tim is feeling a lot better and has been back working for a little while now. He started his PT a couple of weeks ago and is doing really good. Casey has her eye appointment a few weeks back. …

Casey has been pretty busy these past couple of weeks. She has been working hard in all of her therapies (PT, OT & Cranial). She is making progress. She still doesn’t bend on her own, but in PT she was able to get past 90^ on both legs. Cranial and OT have really been helping …