Category: Casey

We have moved!!!  Monday after work Tim and I started loading the truck (& worked through the night).  Tuesday we had some scheduling issues with nursing so Casey ended up going to closing with us.  As soon as we got the keys we headed to new place to start unloading.  Luckily we had a nurse …

Every 6 months Casey has to see ALL of her doctors.  She sees some every 2, 3 or even 1 month, but without fail at that 6 month point she is due to see them all.  I somehow managed to schedule ALL of her 6 month appointments starting last week going through the 1st week …

As many of you may know, we have been trying to find a single story home for Casey for a while now.  The bigger she gets the more space she needs and we are running out of room on our first floor here.  Well, I am very excited to announce that we have found a …

Not even an hour after I posted how we finally have a nurse that we like picking up 2 days a week, I get a call from our agency saying that she can only do 1 day, and it is much shorter than we had planned.  Ugh!!!  I guess 1 short day is better then …

We had a follow up with Casey’s dentist last week.  Casey has been teething (really since she was about 9 months old).  She has lost 10 teeth now and has 15.  Her molars are all coming in, and they look so painful.  Some are coming in her tongue bed, some on the outside of her …

Yesterday was a beautiful and heartbreaking day.  Guiliana’s service was yesterday afternoon.  We were able to get Casey’s nurse to come in so that Tim and I could both go to the service.  It was beautiful.  They had a picture slide show that showed so many wonderful special memories through Guili’s 6 years.  Guili’s dad …

This week has been a roller coaster.  We started out with a visit from some old friends that were in town from California.  Casey had a great time with them.  They read her an elephant story, they had a tea party, and then they all watched ponies together.  She paid the price for a fun …

Things have been busy- as usual- but good.  Casey is still having feeding issues.  She has not been able to gain weight like we had hoped and so we are spending a lot of time trying to get more calories and fluids into her each day.  Her site is still so leaky that it’s hard …

Casey had her recital last night and she did a great job.  All of the kids did great.  We are so fortunate to have an organization like Legacy of Hope in our area to offer programs like 2Dance2Dream for Casey and other kids with complex needs.  Being able to see Casey take the stage was …

It has been a long week around here.  We are not sure what is going on with Casey.  She started doing this crazy thing when we would take her to bed EVERY night.  She would look fine for 15-30 minutes, then her heart rate would shoot up and her oxygen would fall.  We would have …