Category: Casey

Casey has been on a pretty intense respiratory treatment schedule over the past few days.  She is doing 3 hours on bipap, then a round of 3-5 different breathing treatments (nebs) and IPV (with lots of suctioning as we go).  The nebs and IPV run for 30-45 minutes.  When she finishes these we flip her …

We hit the 1 week mark today. Casey has been having some pain issues again over the past 24 hours. We have been trying to get her as comfortable as possible- without much luck so far. The doctors have a few ideas to try and isolate the source of the pain. It could be so …

Casey had a rough night. I was worried her morning X-ray was going to be horrible. It wasn’t worse, but it was not really better either. The doctors decided we need to be more aggressive. Casey is on bipap for the night. We are doing 3 hours on 3 off to try and minimize any …

Last night was the first night all week that we were all able to get a little (not a lot) of sleep.  Casey was more comfortable than she has been in a really long time.  We are able to skip 1 treatment that results in about 6 hours that we don’t have to mess with …

Today started off kinda as we expected based on yesterday and last night – a lot of respiratory and pain issues, high heart rate, etc. and to top it off all three of us were particularly exhausted this morning. We have been doing the IPV lung treatments every 4 hours, as well as a few …

We got Casey’s pain meds managed much better yesterday, and she was sleeping great, but in the middle of the night she was non-stop with suctioning and crying. Her heart rate was up and quick shallow breaths. We could not get her to cough anything up, and the tube that is in her nose makes …

Casey had a rough night again last night and it bled into the morning & afternoon. They increased her morphine again and added a sedative to help to the edge off as needed. Those seem to be helping. Since we have to wait on the new tube to heal before we can use it Casey …

This morning started out a bit rough after a really long night. I laid down to get some sleep while Tim sat with Casey. I was so happy to wake up to a much happier baby. I think she just wanted some daddy time. She was still a little restless, but settled down and got …

Casey had a rough night, but her numbers look ok right now. They bumped up her continuous morphine rate, so between that and her just being exhausted, she is finally trying to get some sleep (and Marty is out too). One of Casey’s friends unfortunately checked into ICU yesterday too. Please keep Giuliana in your …

Casey is out of surgery – it went a little longer than expected but not much. No serious blood loss and they already extubated her. The new J-tube went in fine. There is some concern on how the old G-tube site got closed up, due to the amount of damaged tissue, but they are keeping …