Long Week

Casey has had a rough week. She get a nasty stomach bug last week. Just as she was getting over that she got an eye infection. She is still on drops for her eye, but it looks much better. I think she is feeling better. There are a few things we have been working on …

Fun Day

Casey spent the morning doing one of her favorite things – movies! After lunch we got her ready for her usual afternoon therapy at Dell. We got ready a little early and decided to go up and visit some of her friends. It worked out great. She got to see lots of her nurses, CAs, …

Latest Updates

We are making some progress with Casey’s seizures. They started her on Kepra last week. Apparently a lot of kids are on this drug. She has been doing pretty well with it. They started her on a fairly low dose. Her twitches were noticeably less with in a few days. They are not fully gone …

Busy Week

Last week was a busy one. Two of Casey’s four day nurses are changing their schedules for the summer. Her Monday nurse’s last day with us was this week. She is going to cut her hours back over the summer to spend some time with her kids. Casey’s Tuesday and Wednesday nurse also finished this …

Site Updates!!!!

Check out the new Reviews section. We have also updated our Photos section. The “Reviews” section has all of our current items (and some old). As we get new stuff we will be sure to add them. We have grouped them easier page navigation. We list out pros, cons, cost, and any our opinions on …

No More Ear Infection

We just got home from Casey’s ENT. He was very happy with her ear. The infection has cleared up nicely. He said that over all she is doing great. The cholesteoma is stable and the right ear is still doing well with out a tube. We have to stay on top of it (every 2-3 …

Updates

On May 3rd Casey went in for her 4 year appointment. This was her first full appointment with our new pediatrician. It went well. Casey got 3 out of 4 of her vaccines. We opted not to get the chicken pox vaccine. Last time she had a really bad reaction. She did get her DTap, …

Fun Week

We had a great week. We finally took our first family vacation. We have gone away for a night or two here and there over the past 4 years. However all of our previous trips were medical related. This week we took a trip just for fun. We took Casey to San Antonio after work …

Birthday Girl

Casey turned 4 on Friday. I can not believe she is already 4. The years have really flown by. She had a great birthday. On Friday I told her it was her birthday so she could do what she wanted. She took that very literal. She opted to sleep in. When her nurse tried to …