Category: Casey

I blinked and somehow lost a full week. That keeps happening. Tim has gone back to work. I really got used to having him around all day. Sadly he ended up having to go back to work on his birthday. We celebrated on Thursday though, so it was not too bad. Casey’s pulmonary doctor called …

On Thursday Casey got to hang out with her nurse all day. They had lots of fun. While they were playing Casey’s purple pads showed up for her stander. Tim got them put on pretty quick. It looks so much more Casey now 🙂 Black is just to boring for a kids color. I had …

Poor Casey is going to have to wait to see her ENT. I called Monday morning to try and get her in this week instead of our previous date next week. I was told that they were going to call me that day already to reschedule, but not for earlier for later. The doctor is …

Last week we went to an orthopedic doctor here in Austin. Happily I am reporting that we really liked him and his team. It will be much easier to go up the street instead of all the way to Houston. Not to mention, with him here he is in the same group as her other …

This is the first minute I have had to sit all day. Casey had vision, speech and physical therapy today. We pulled the Theratog back out and she wore it for most of the morning. When PT got here she helped me get the stander all set up. I was way off. I am glad …

Casey had a busy week last week. On Monday she had a couple of therapies. Tuesday she and I went swimming. On Wednesday she had therapy and then that evening her stander showed up. On Thursday her nurse was here. Us girls drove loaded up Casey’s new chair and headed down to my old company. …

No real news to post right now. We had a nice quiet 4th at home. Casey is still having a little trouble with teething. There are so many coming in right now that it is causing a lot of extra secretions. With all the secretions we have had to suction a lot. Because of all …

It’s finally here. We have been waiting so long and Casey’s chair finally came in today. It is such a great fit. There were a bunch of custom add on just for her. With all the customizations she can say she has a pimped out ride 🙂 She fits perfectly in it, and it will …

Casey has been doing really good. She and her new nurse have been getting to know each other. We all went swimming yesterday morning. Casey showed Laura how well she can float. After swimming Casey had 2 therapies scheduled and had to get a bath. With such a busy morning she crashed right as her …

It is really hard to believe, but we have been back in Texas for 6 months now. It seems like we just got here. So Casey and her nurse have been getting along really well. Tim and I decided to go on a date yesterday while she was here. It was the first time in …