Casey’s updates ended up taking much longer than I expected so I figured I would do the rest in a different post. Tim is the youngest of 7 so there are a handful of nieces and nephews on his side. The first niece got married at the end of June. Since we did not have …
Where were we?
Oh, that’s right we were just chatting about our week from HELL in June. Well, since then things did get a lot better. Grandpa did well in rehab and got to go home just in time for 4th of July. That was steak night at his assisted living center so he was really excited to …
Week from HELL
Monday morning came and Casey was still not doing well. Now in addition to needing oxygen at night she was needing some help during the day as well. her seizures were increasing and the amount of stuff she was needing suctioned was out of control. We talked with Casey’s doctor thinking it must be a …
Father’s Day
Casey started to look a little better Monday and even better on Tuesday. By Wednesday she was doing well enough to meet some of her friends for an arts and crafts play date. They made crafts for their dads with Father’s Day coming up. Sadly, Tim is not going to be home for Father’s Day. …
Pittsburgh
I made it to Pittsburgh! It has been a long time since I have gone anywhere and 2 nights away from Casey is the most I have ever done. This trip is actually pretty exciting for me. When I merged CLU with MOM a while back I have a business partner now, Anita. We have …
May Wrap-up
A lot has happened since our last post. I started to write one big update on everything and realized it was a bit too long. Instead I am going to break things up into a few posts. Toward the end of May Casey had some signs of a possible urinary type infection (this was new …
Casey’s Super Fun Weekend
Casey has had a wonderful long weekend. Thursday got off to a rocky start, but we made it to water therapy around lunch time and that seemed to turn things around. Her PT is going to teach Tim and I how to do as much of the water therapy exercises as we can so that …
The Pool is Done
We were just a few days past Casey’s birthday to fill up the pool. We are all loving it. Casey has gone out almost everyday for at least a little while. Its still a little chilly so she is happier putting her feet in and sitting around the pool right now than actually swimming. I …
Casey Turns 8
Casey has had a fun week celebrating her 8th birthday. On Wednesday she had to start her day with a trip to see a new specialist. It was not the best way to start her birthday. She let her nurse and I know that she had other plans. After leaving there we had to get …