We are back in our hotel room in San Diego and relaxing after a long day – here’s a play by play of our trip to Mexico: Someone from the US research institute picked us up around noon at the hotel. He had a nice minivan so transferring the car seat was very quick and …
Well, we are just about loaded up and ready to hit the road. We should be well on our way by 8:PM tonight. We are heading to San Diego for the night, then at 11 tomorrow morning we will be picked up at the hotel and head over the border. We are tentative for a …
Oh wow, it has been nearly a month since our last post. Let’s see, where did we leave off? Tim mentioned that we are looking into stem cell injections for Casey. We are finalizing all of those details now. It looks like we will head to San Diego after Tim gets off work and traffic …
Well, there is less than 1 week remaining in Casey’s 40 hyperbaric oxygen sessions. We have seen a few little changes over the past couple months. She is now able to take the occasional bolus feeding (sometimes up to 80cc at once), crinkles the corners of her month at times, and even managed to flip …
Casey had a nice visit with her Cappy. My mom came in for Thanksgiving and stayed for a few days to spend some time with Casey. On Wednesday before the holiday Casey had her 7 month shots (with the second half of her flu shot). She had never had a bad reaction to the shots, …
It’s been fairly quiet on the home front. We had a crazy few weeks, but we are settling into our new routine now. Casey is doing good with HBO. At first she would wake up a lot and shift around. Now that she is used to it she sleeps thru the entire session. She normally …
Casey’s first week of hyperbaric oxygen treatment went pretty smooth. Marty and Casey are going every morning from 8-9am Monday-Friday for 7 more weeks. The doctor’s say that most people who see improvements don’t see anything for the first couple weeks. So far we haven’t seen any changes, but Casey is tolerating the treatments well …
Casey’s ear tubes were successfully placed this morning. She was able to get the same anestesiologist as she had for her last procedure. Dr. Ayad is so good with her and we just feel so much better knowing he is the one watching for suctioning and such. The ear doctor told us that she removed …
