Oh, I have not posted in a while. What a crazy few weeks we have had. Shortly after my last post Casey got really sick. She had fevers, crying all the time, her secretions were really thick and nasty, and she was just miserable. We had to take a culture already to get a new …
Latest Updates
Last week Casey went in for her pulmonary follow up. The appointment went well. Casey was really good and her doctor was happy with how she is doing. He ordered a new culture that we had to have sent to us so while Casey’s nurse is here this week we will get it done. Based …
Flower Fariy
Laura was here today so we decided to take Casey shopping and let her pick out a Halloween costume. We went to Old Navy first but they didn’t have much. She did not respond to any of them at all. She liked some tee shirts, but none of the costumes. Just down the street (on …
Little Room
We had a nice surprise yesterday. Casey’s new vision teacher came out to meet Casey and Casey’s ECI manager. We expected just a quick visit to touch base on what Casey’s previous teacher was working on. However when Clair (the new teacher) and Clair’s boss came they had a big bag with them. Early this …
Fun Weekend
Tim got home around 11 last night. He was exhausted from traveling. It sounds like he had a really fun weekend in Chicago. He got to spend some time with family and friends. He did great on his swim and started out great on the bike. He had a bit of a spill about half …
Chunky Monkey
What a HUGE day!!! Casey had a GI appointment this morning and she has hit 26 pounds. Wow, that is awesome. The first year plus we could not do anything to get her to put on weight. Her doctor actually warned us to be careful and not let her get fat. He was serious too. …
Neuro
We just got home from this mornings appointment with Casey’s neuro. It went really well. Casey was very good there and in the car going and coming. She sat in her chair while we were there and she did great. We talked to the doctor about the spasticity clinic. Since she is the main neuro …
ENT & More
We finally have the table top for Casey’s chair. Now not only can she sit and hang out, but her toys can come a long too. She seems to like having her toys right in front of her. We just got home from Casey’s ENT appointment. I have mentioned before, but I will say it …
